Don't Fear BFS - I Survived

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sarah1234

Well-known member
All,

I wanted to tell everyone not to fear. BFS is real and responsible for your symptoms, not anything that's fatal. Believe me, I went through it all, twitching all over, tired, tongue thing, testing, etc.... Guess what, after 5 years I am still alive and kicking. The answer to getting well is truly moving on and concentrating on the important things of your lives, not fear. If I can be of help to anyone please PM me

P.S. e-mail removed due to flames from board members.
 
I never said I was against any PM or answering questions on the forum. And I am not trying to be a savior...which is a ridiculous notion. I was just trying to help others. By the way, my e-mails have been around 50 plus so far .... Really, as I said, I was just trying to help. I think it's comical or "incongruous” to believe that some feel the solemn duty to screen a "snake-oil-salesman" for others on this board. I really do believe that individuals are smart enough to read internet scams. Besides, where do you get the notion that I am selling something to the members here? Do you have proof of your foolish claims? You know... I have never attacked anyone on the board and I am not about to start. Let's concentrate on helping others get over the fear of ALS, not argue over my credibility. I can assure you, I am the real deal, been through it all, and was on this board reading posts long before most of you. Don't worry, I am not trying to steal anyone's thunder. Hopefully, I can add some insight into a few issues and provide some assurance to others that life does go on once BFS is dealt with mentally. Thanks All
 
Here, if this helps anyone, please do not e-mail me as the controllers of the board forbid this. By the way LisaLM, there have been over 370 plus views on this thread. 50 e-mails believe it or not is possible, do the math. OK, you got me, I actually counted 46. All, if you would like to converse, PM me or post. No more need to waste anyone's precious time over this thread anymore. Thanks Have a good one.
 
I know I shouldn't get involved, however, if someone wants to post their email address, what is the big deal? If he wants to receive email from strangers, that is his business. Why waste time typing about it?
Just my thoughts...
Amy
 
I have seen absolutely no changes since 2007. Same twitching. Now I realize that this is no going to get any worse. Therefore, nothing to fear. In fact, I feel as strong as ever. Hope that helps. Happy Thanksgiving all!!
 
I am checking into the board to reassure many individuals that are still scared of the BFS symptoms. My original post was many years ago. I figured I would log into my post and update it even though there were some really idiotic ignorant responses years ago...lol. Geez, I was just trying to help people. Good news everybody, I have been twitching for many years now and I am still as strong as ever!!!!!!!!!!!!!!!!!! Rest assured that you do not have anything serious!!!! See I told you!! Good Luck!!!!
 

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