Discussing Twitching Symptoms in UK

owingDuckWhistler777

Well-known member
Hi,

I'm fairly sure that my symptoms are due to BFS but would like to run them by other members of the forum. I'm from the UK but I don't think BFS has been invented here yet.

I started noticing odd twitches 2 months ago in various sites of my body every few hours - arms, legs, chest wall etc. As the weeks progressed, these became more noticeable and they are now coming every few seconds. In the last few days, both calves have been "buzzing" almost constantly. Most of my symptoms have localised to both calves, and there are almost constant fasciculations visible to the naked eye, not all of which I can feel. The fasciculations are sometimes worse after coffee.

I also developed a bumping noise in one ear, which I presume is due to fasciculation of my middle ear muscles.

I have no weakness or difficulty speaking/swallowing. In the last day or two, I have noticed mild cramp in one calf which comes on with walking and goes away after resting.

I saw a neurologist a couple of days ago, who examined me & said that he thought MND/ALS was extremely unlikely but if I was sufficiently worried, I could have an EMG.

I'm obviously still concerned about the possibility of MND/ALS and am sort of sitting about waiting for new symptoms to develop. Do my symptoms (esp. the cramps) sound like the sort of thing you would get with BFS?

Thanks a lot.
 
You have very typical BFS symptoms. There isn't anything in your description that sounds out of line for a typical case of BFS. Even the ear thumping - I've had the exact same thing. I'd get the EMG though. Just for your peace of mind. Many people let the fear of ALS ruin a year or so of their lives. Remember this (info from one of the major ALS clinics in the US), once fasics start, a clean EMG always means you don't have ALS.
The less you worry about them, the less frequent they will be. Welcome to the club!
 

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