Discussing Symptoms of BFS/ALS

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RobbyTheBuddy

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Hello all,I have been following this site since April and would pretty much like a view from everybody as to their thoughts on my symptoms if you could be so kind. Intially worried about PD or MS it has now moved to BFS or ALS/MND given what is happening at the minute. In essence this all started about 8 months ago and continues to this day, all symptoms are the same apart from twitches especially in the calfs which are getting worse. 1.Started with an internal shaking in the left had which is still there, accompanied by twitching between finger and thumb on the left hand and also the same twiching on the right hand. The twitcing on the hands has stopped but the internal shaking feeling remains the same. Weired to watch a thumb move about an inch from left to right on its own.2. Twitching in the calf on both legs started about 2-3 days after the problem with my left hand. This is permanant and has been for 8 months night and day, can be seen to the naked eye in both sides all over the calf, both Calfs ache and it sometimes wakes me up or at least i wake up and notice it. I also get a nervous sort of apprehensive feeling at the back of the leg sometimes and also twitches at the front of the lower left leg. 3. I have the odd twich here and there all the time. This may be an hour or two between as a maximum but soemthing will twich at some stage. Many of this where the hamstrings are int he top of the leg. All comments are welcome. Very worrying indeed. Been top the Neurologist who did not take it seriously I think at the first meeting but having seen the twitching he has sent me for an EMG which is tomorrow night (17th November) wish me luck. I have a real bad feeling about it.Kind regards to everyone.Rob
 
Hi Rob,I can understand your worries, but what you describe sounds like classic BFS. You do not have any weakness and after 8 months of twitching with *** you surely would. And your neuro doesn't seem concerned. I predict with confidence your EMG will be fine. Please let us know how it goes... I've got mine today at 2 and I will do the same. Hang in thereVictoria
 
Good luck to you and thank you for you reply. I was at the gym last night for the first time in a long time and managed 30 minutes on the Crosstrainer and 10 minutes on the Treadmill. Calfs did ache all the way through and were very weak at the end though. I also play football (soccer) each week for 45 minutes as well, however I think I am beginning to think the calfs do look a bit thinner. Kind regards.Rob
 
Sounds a lot like my symptoms. In the calves anyway. It smacks of absolutely bona fide classic bfs.Best of luck with the emg im sure it will be fine.
 
It seems to me bfs n cramps.I am confident, u r going 2 have normal emg.Keep informing.Goodluck n wellcome to this board having some great persons...baily.
 
Your fine, and youll see tomorrow that the EMG will be fine, the number one thing is weakness not twitching, and given the fact that you can still exercise after 8 months, then its nothing more than BFS or BFCS. Relax, and start thinking positive, dont spend your time checking your body for dents, its a waste of valuable time.
 
You sound like a classic BFSer to me as well. Your EMG will be clean, no worries there. Please dont worry about your calves looking thinner either, atrophy would not take place in both your calves at the same time, it wouldnt even happen in the whole calf all at once, so no worries there either. Breath easy Rob, you're one of us :D)
 
Good luck on your emg it will be fine. I have had this for over 14 months and my calves twitch and are now stiff all the time besides all the other twitches I get everywhere else. I still work out and exercise so I am not letting it keep me down. It is just bfs. Annyoying to be sure, but you will be fine. Mary
 
Thanks to everyone for your words of wisdom. This site is not one I really want to join, I am sure we all feel like that but it is better on this one that some of the others if you know what I mean. The lesser of many evils, so while I want rid of this annoyance I am hoping the EMG points me to here long term. Nice to see so many pleasant people on here too, best wishes to everyone. Rob
 
Hi Rob,Like the others have said it sounds like BFS/BCFS.... Any news on the EMG..? Take it you are in the UK as you referred to soccer.. I am too and play FOOTBALL (lol) once a week, so i think you can be assured by being able to manage that, plus the gym, that it is more likley BFS/BCFS than anything else.Take it easy,
 
I had the EMG at the local hospital in Sheffield, England. Remarkably and quite by chance the Queen was opening a world leading ALS/MND research centre there the next day and the Doctor performing the EMG was the local expert and the was part of the research group.Nice chap and he picked up twitching in the calf on both sides, however, he did say it was twiches that were not consistent with MND but more electrical or electrode. He said not too worry and come back if I did and that while he cannot guarantee me getting MND/ALS in ten years I do not have any consistent symptoms now.The result, well I have to go back to the Neurologist but it looks like I am here to stay with BFS. Kind regards to everyone Rob.p.s. played football this weeka nd scored the best goal i have ever scored, so the BFS is not affecting me yet!
 
Based on all these repsonses I think you could say 99.9999% BFS ;) I concur as well! I have all that stuff as well. Yep, calves are 24/7+!!!. I ignore them now.Dont worry...you will eventully 'get used to' the joys and surprises of BFS : :cool: cheersRodger
 
Thanks to everyone for the kind words.I just have to say these things are very annoying! Apart from each calf I also get a twitch in one part of the body which lasts for about 3-4 days and then moves on. Somehtimes it feels like being plugged into the mains!R
 

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