Discovering BFS Cause: HSV-2

[maxxximer]

After visiting numerous neurologists and pretty much spending days on end trying to figure out what caused my BFS...I've found that my BFS was caused by a HSV-2 (Herpes Simplex Virus) infection all along.

I apparently got infected last year, though I didn't realize it at the time...but I was experiencing "weird symptoms" (like tingling) in my legs which I brushed off. But after visiting a doctor and looking back on them, they were Genital Herpes outbreaks. And pretty much at the same exact time as I was experiencing those Herpes outbreaks...I started having muscle twitching all over my body (especially the legs).

I have finally received a confirmation of my herpes diagnosis by blood test...and I'm sure it is the culprit because after reading up on message boards for Herpes sufferers, I've found that other people have complained about full-body muscle twitches!

So...in short, I'm 100% SURE that there is a link between HERPES SIMPLEX VIRUS and BFS. It may not be the only cause behind BFS, but just in case, my advice to you guys is to go get a blood test and find out if Herpes is the cause behind yours too. If it is, maybe we can figure out a way to stop it.

Any comments?

 

[Selena647]

Is it only HSV-2 that you think can cause it ? The reason I'm asking is I've been faithfully married for 11 years so there is not chance of me having HSV-2 (that is unless my husband has not been faithful - which I have no doubt he IS faithful.) However, since my muscle twitching started, back in April, I have had 4 cold sores! I used to rarely get them. Maybe once every 1 or 2 years. Now I've had 4 in the past 7 months. I have to admit the thought did cross my mind...could that virus have anything to do with the twitching. I actually did have a cold sore at the time my twitching first started.

What do you think? Could the HSV-1 Virus be a culprit also??? Or am I reaching.

Any thoughts anyone?

Barb

 

[twitchamy]

I don't know about BFS for life. Mine seems to be almost 100% gone after one year of suffering from twitches/buzzing etc...

I wouldn't be surprised if I had a 'relapse' of sorts at some point in the future....however, right now, I'm on my third month of being practically twitch free. So I'm thinking there's hope that this isn't for life. Plus, the neuros I've seen have all said that it can disappear as quickly as it started. Seems to be what happened to me.

I still have fun coming to this board to see all the discussions--everything is so interesting since this is such a bizarre 'syndrome'. Thankfully it is benign. And even more thankfully, it's no longer affecting me. I'm happy to see that so many people on this board have made a turn-around and truly accept that it's a benign condition--rather than fearing something worse (which is just simply unfounded).