Diagnosis: Anxiety-Caused BFS

[MysticalGlitchy]

Officially diagnosed with BFS?

Nope! I was told by my first neuro that I had post-viral polyneuropathy. Then after four months in pure panic, I coughed up money to be seen by an MS specialist at Mayo Clinic. It's a team approach there, so I was first seen by a resident doc then the supervising MS specialist. Their diagnosis was anxiety causing benign fasciculations. Went back 2 months later for tongue twitching- a new resident doc (who's friend has this stuff) said I had GAD and benign fasciculations. The supervising MS specialist said specifically to me- "you can call this a syndrome, but you have anxiety and it is causing your symptoms". The resident doc (the one with the friend) did refer to it as BFS, but NOT in her written report. She said GAD with benign fasciculations.

So....

 

[MysticalGlitchy]

Sorry... I ment to say somewhat!

I call it BFS but my doc do not. Keep in mind that I went to the clinic that is know for its case study in benign fasciculation syndrome. FRUSTRATING!!!

Oh I forgot to mention... one ALS head doc there supervised my EMG and she asked if I had heard of BFS. So... there's another stump.

 

[sparkluv93]

No, not "officially" diagnosed. Had one neuro mention it offhand, but that was about it. BTW, what is the name of the clinic where you went that had done the study on BFS?

 

[MysticalGlitchy]

Me?

I went to Mayo Clinic here in Florida. The actual case study probably wasn't done here in Flordia- I'm assuming MN the home base clinic.

 

[massagefanrx]

Nope- my GP told me to drink more water...then when my reflexes were brisk and I questioned her on them, she said she could order an EMG if I wanted. I said ok. She never called me back with a date. The neuro-psych guy I saw wrote me out a prescription for Zoloft that I never filled.

Then, I got irritated with all the worrying and the twitches slowed down....alpha lipoic acid? calcium? Naked fruit smoothies? you got me...
all I know is that my calves are only doing a jig some of the time, not all of the time so I'm happy.

 

[timsuprelax]

i was told Myofacial pain syndrome and he prescribed Cymbalta- I did not start it- he mentioned BFS perhaps, however only after i had mentioned this web sight had he made that a possibility- anyway I was on anti inflammitory med volteran- it seemed to work pretty well for my pain and stiffnes on the left side of my body- i ran out of the scrip last friday- and i can tell the difference- im more tight now and in more pain so i dont know whether to get bac on it or just try asprin and ibuprophen - any way- never diagnosed as having BFS specificly
David S