Desperate for Relief: Twitching and Pain

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keegansmommy5

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I can't take this anymore! Every day I wake up and feel like I didn't even sleep at all! The twitching is worse and the whole right side of my body is in so much pain. I feel like I can't use my right hand correctly and I am walking different. I pray every night that I wake up and feel like my old self again. I am also scare of the slightly abnormal emg tht I had done even though they said tht it was inconsistant because the second time tht they did it, it was normal and the first one tht I had done was only a month b4 and it was perfectly normal. I am now having symptoms of a tight throat and it seems like new symptoms every day. If it were *** would there be other things tht should have shown like fibs and all those other things and would the surrounding muscles also have the bad stuff? Does it cause constant internal shaking bcuz tht is driving me crazy- it never stops I just feel it more when I am not moving around. I am taking xanax for the anxiety but I am still having issues because of the symptoms and I am sooooo scared. Would all of these symptoms manifest both limb and bulbar over a two monthv period and can a virus like swine cause ***? I am forever greatful for any responses and help. Sry so longKeegansmommy4
 
I have both limbs and they started simultaneously...so you're not alone...it seems not be ALS at all. Remember ALS starts focally in one limb. As far as your throat, I would see your gi specialist to make sure that it is GERD related, because you have acid reflux. I have internal buzzing in my foot and pinky finger of right hand..4 months now...b/c I had perceived weakness + tremors, ive consistently felt like im losing control of my hands...being able to type and right it is reassuring. Regards,TUB.
 
Keegansmommy4,As you know I am going through exactly what you are. I am a 37 year-old, very active female and this hit me suddenly at the beginning of the best summer of my life. It is very anxiety provoking and frustrating. This board is a going to be a big help to you and give you a place to vent and commiserate with others who know what you are going through. Time is the best healer for this. As time passes and things do not progress you will feel better and better. Do not focus on tiny changes because there will be symptom flares and rotation of symptoms around the body. Focus only on major ones that prevent you from doing normal tasks or cause physical suffering. Do you keep thinking about the abnormal finding. Many of us have those. In fact, I would guess those that have them have just had more tests. The more tests the more likely something abnormal will pop up. We all have something abnormal anyway--the twitching, tremors, vibrations, etc. We all are lacking complete understanding and have to find a way to keep going. Focusing on living and forcing myself to do everything I would do if this were not going on and more has helped. Also doing things to pamper myself like taking an exercise dance class and joining a spa have also helped. But again, time passing has been the best reassurance. I do keep seeing doctors and having tests since I think that is smart and I believe something is or has happened. I just am more convinced that it is something I can deal with that will not derail my life. Everyone will have a health issue here and there. It is part of being human. Krackersones
 
Hi Keegansmommy,Good day, Yes, I can understand your current situation, these first weeks of your experience sure, are very difficult to take. Its very hard to believe it will get better some time soon. But in reality, what is happening to you is a very natural and comprehensive reaction given the "odd" nature of our little friend Mr. BFS.But mommy, as hard as it is to believe right now for you, BFS does and will get better for you; but it depends on how much you can control this initial anxiety/fear that you are feeling.The "What the hell is happening to me" phase of BFS will pass very soon for you, believe it bc its the truth and it has been the road we all traveled, just like you are.Key Elements right now:1. Address your current ALS fear the best way you can.Fear isnt that bad you know, give yourself some space and time to process it, slowly get rid of it, and for properly doing it you have the best friend we all have with BFS : Time. Let those unbalanced emotions flow throw you, cry if you want to, now its the time to waste everything that doesnt help you. That "Bag of *beep*" like I call it , needs to be thrown out of your life but mommy, only YOU can do it.My BFS began exactly one year and two days ago mommy, I was at the same spot as you, but I managed to conquer it (like every other forum member) and now, you cant even imagine how good Im feeling. I did it and so can you.2. If you have the opportunity to go to an anxiety specialist (psychiatrist), go do it; for me it was a huge help. He was able to rationalize what I couldnt at the time. Also if you are on medication, he can adjust it properly for you. In my case, I was on Klonopin for 4 months + Zoloft, inmense help. Klono has the great advantage over other benzos that its half-life is the longest, making it suitable for acute anxiety episodes.3.Mommy If I have to repeat everyday to you that you dont have either limb onset or Bulbar Als, I will do it, believe me, I am a very patient man; but the only true and hard as steel reassurance will come only for you, not from me or from anyone on the board.4. Try to not dwell on your symptoms , remember ALWAYS that they are of benign nature, BENIGN, what a beautiful word isnt it?. Which are the underlying causes for your symptoms? Honestly, if they are benign, does it matter? 5. If you want to read positive experiences of BFS, look in the archives for these board members :BassoLisaLMKitMarioMasherPugriffeyoccasinsMariaJKevinTwisterKimChris_swlSlavinBreezeGaryMAllGoodHereristinaL91Aarondranyabdebbstrumpuspantstui So on....... I can mention thousands, hey.... as matter of fact being a member of our beloved forum guarantees you a happy ending to your tale.6. Homework for you mommy; tonite go to bed with your kids, cuddle them, kiss them, embrace them, feel all that immense love you have for your beautiful kids and on that precise moment, promise to yourself that you will be strong and that you will conquer successfully this experience. True love ALWAYS kills fear, experience it for yourself.Hang in there mommy , it really gets better.Eduardo
 
Just wanted to add that you should check out recent posts by BillBob. He is one of the founders/moderators of this site and had an abnormal EMG many years ago and is doing excellent.
 
You are not alone... I am going through similar things too. I just wish I could return to my old normal self again too. I'm also scared. I will have emg on 14th my first emg ever so I am nervous. And I have weird buzz sensation too after I eat and drink around my lips. My thighs have seemto gotten stiff all of a sudden and I couldn't sleep at all lastnight. I also have 2 babies I have to take care of and I am so scared too.
 
Keegansmommy4 - Not getting enough sleep will derail your efforts to calm and heal yourself so this is one thing you may want to deal with. It's like having a bad cough, you can't get sleep so so can't get well and you can't get well so you can't get sleep....you need to break this cycle. Call your neuro or your GP and ask for help with this even if it is just for a week so you can get back on your feet. Like everyone said - the other stuff will work out if you give it a chance and be proactive - trust us about this - we've all been there and wouldn't lie to you.
 
excellent post ed. Maybe u can help with this..im convinced that I dont have ALS...as I told u before I had jaw pain from clicking (clicking for like 10 years; pain developed 2 mo. ago)...on the right side...now its gone...but I feel a tense-ness in my cheek on my left side...i havent had any issues..but cant help that it feels sore..for like 2 days now...thanks man.TUB
 
Thank you to everyone who responded! I am going thru something physically and mentally that I have never experienced and am so very thankful to have come across this site full of caring wonderful people. I hope that you all are right and that I am gonna be ok because I still have a lot of livin left to do :) I'm sure ill have more questions but just wanted to thank you allBtw my name is emma so u can call me tht if you'd like since my username is kina long.GOD BLESS
 

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