Defining BFS: Evidence-Based

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mymy16

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I thought it might be useful for anyone visiting this site to have access to empirical evidenced based information. I believe we often confuse our own opinions with fact, or we have a little information which is expended upon by each other beyond a reasonable definition. I thought this thread could be used to define objectively what BFS is, within reason, and what it is not, along with the following information; (Treatments that have stood the test of time and are understood to be effective) (professional evaluations and opinions) ( research literature) I believe anyone visiting this site for the first time would appreciate some objective information. please put links below.
 
Regardless of the author's intent, the point is he/she/they could be wrong in many cases, especially without providing information/documentation on the sources or studies used to generate this stuff. Over the years I've ran across plenty of sites that made claims that were questionable or flat out wrong based on what we know in this community. I just want people to keep that in mind when they view sites with "evidence based information" that fail to provide sources or studies for verification. Even some inexperienced neurologists often give bogus feedback about BFS or related topics which we refute based on our extensive experience. No site or source can come close to this one for true, unbiased, empirical evidence on BFS. Not unless there is some other community of 4000+ benign twitchers who have spilled their life stories in every detail.
 
I think you have taken a very small bit that doesn't fit for you and made a mountain out of it. I believe the information to be informative and accurate.If you would like to contribute any literature you have it would be appreciated. Regards Martin
 
Whether or not a very small or large part fits for me is irrelevant. My intent is only for people to use caution in accepting information provided by unknown authors/studies in general, and to reinforce the fact that this site contains the best information on the subject of BFS.
 
Well just join in and contribute your wealth of knowledge and information it would be appreciated, just paste it below.Regards MartinPS.If anyone else would like to join in and provide information for this thread it would be appreciated. Unfortunately it's looking a little fragmented now but maybe it could be restructured with all the information in one bit and the comments in another.
 
This is wrong... right (from the latest link)? So many of us have been found to have fasciculations on our EMGs. This must be misinformation. Maybe they mean fibrillations? Can someone clarify?3. Benign Twitches – these are sometimes called ‘benign fasciculations’. Most people have small twitches from time to time, especially around the eye and in the fingers. Such twitching is so common that to experience it occasionally is normal. However, some people find that they experience more and more of this muscle twitching until it is present in multiple areas of their body, for most of the time. This can lead to understandable anxiety about what is causing the symptoms, which in turn makes the twitching even worse. Generalised benign twitching like this is known to occur more frequently in medical students and doctors who, on developing these symptoms, worry that they might have motor neurone disease (known in the USA as ALS). In fact the twitching seen in this condition, which affects the whole muscle fibre, is different to the smaller wriggling movements, called fasciculations, seen in motor neurone disease. The condition is therefore somewhat misnamed as benign fasciculation. There are other causes of generalised muscle twitching but benign fasciculation remains the most common clinically.
 
How can someone say "it is rare" since there is NO study done on that subject?No one is interested to study this since it is not prestigious and will not kill you even if your life is a lot perturbed by this.So the response is always ..."stress", "anxiety" ..
 
Hi Frances,I believe Savella It is similar to duloxetine, it's an SNRI. My friend takes duloxetine. They both promote noradrenaline and gate pain feedback from the body to the brain.I am please it is helping you. I am not sure if I have Fibromyalgia or not. I have been invited to there next monthly meeting. Not sure about that one :eek: Regards Martin
 

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