Decreasing Twitches & Muscle Fatigue

[Savanturn]

Hi,I am 1,5 year twitcher who was OK but now is going down..again. I noticed that my twitches decreased to only 1-3 per hour (I mean 1-3x few twitches), but they appear in the same locations. Shoulders, knees, thighs, arms and thumb/hand. Sometimes also in my cheeks or calves, but mainly in those places. I have also mentioned in another thread that my muscles get tired (burning feeling) pretty quickly, my joints crack and when pressing sometimes firmly with my fingers, I feel tendons between my fingers to "jump".I have also a lot of mucus in my throat, but thats probably caused by my chronical sinusitis Heh, not too funny anyway...but due to above mentioned Im again affraid its ALS

 

[aeleMichaele]

Well, let me put that way. I am envy of you.1.5 years = clean bill of health. 1-3 twitch per hour???? that is probably the best average here! Same location, but spread? isn´t that the samething?Ah, btw, my joints crack a loooooooot. Probably always did it as I am double jointed... some people say this can be a proove that this is a bit of auto-immune. Who knows?And, about the mucus, WINTEEEER coming. (so many people complaining about mucus) I would be happy to forward 1 year and have my fears gone for scientifical and estatistical reasons.

 

[MitchM]

is there a strong link between mucous and ALS? I mean, those who have the problem on the board worry about the mucous being a sign of bad, bad things, me included.

 

[Savanturn]

MitchM: no, its not. With ALS bulbar onset there is a lot of mucus and saliva in the throat just because the person cant swallow it correctly... I didnt mentioned mucus due to ALS, but due to probable virus infection I have.

 

[MitchM]

Savanturn: do you know alot about bulbar? Is there a certain pattern it follows? I am just worried because i have this mucus deal.

 

[Savanturn]

MitchM: do you have trouble swallowing? If not, then its not related to ALS or other nerve-affecting condition. ALS has nothing to do with mucus, but if you cant swallow, you cant clear your throat well..

 

[MitchM]

well, when I eat or drink the initial swallow is fine. Sometimes it feels like food gets stuck, and sometimes its like food is coming back up and then gets stuck. For instance, yesterday, I ate and after wards a little food came back up when I burped (sorry, that is gross). Also, sometimes after I eat and during, mucous comes up. Are you saying it would be a problem if I couldnt clear my throat?

 

[MitchM]

oh, and also, I feel like there is a lot of mucous, and I am haking up mucous. Not all day long, but its way more than normal.

 

[Savanturn]

So you simply have some infection, I have the same due to chronic sinusitis in my right sinus nasal.. If you dont have any troubles with muscles inervated from bulbar area (facial muscles, throat including tongue), its not bulbar ALS...

 

[MitchM]

so you are saying that if I can stick my tongue out, smile, whistle, move my tongue around, push out my cheeks with my tongue, etc, I am ok as far as ALS? Also, the fact that I can eat and talk, etc., thats a good sign, right?

 

[Savanturn]

Yeah of course. Mainly if you can swallow, its OK..btw dont concentrate on swallowing or you will definitely feel that its no alright - I know it Mucus has nothing to do with ALS until you cant get rid of it. So relax and stop looking for bulbar symptoms...

 

[MitchM]

Savanturn: Your right. Sorry for bugging you with my questions, but this idea got into my head and I cant shake it. I am actually going to doc for a swallowing study on friday. its just that I started noticing some body wide twitches, looked up ALS, so that swallowing can be implicated, then started swallowing all the time to see if that was ok. Then I noticed mucous, looked that up, and saw something on evil internet about someone having mucous problems and had ALS. So, now, I am sticking out my tongue constantly to see if I can make every possible movement with it, worried ill wake up one morning and not be able to move it. Worrying about if I am talking correctly, too. Thanks again and I will try to calm down.

 

[angusglover]

Guys, you are aware that Bulbar is the most progressive ? If you have been twitching for some time, then rule bulbar out. Also, if you have been twitching for 18 months and you can still walk, talk, do pretty much anything, then welcome to the BFS club!!!Stay Well.

 

[TompeteA]

After 18 months with Bulpar, you would most likely already be 6ft under, it is very aggressive, the life expectancy from the onset of symptoms is 1-2 years. You have some strange stuff going on, but it is not bulpar.

 

[avidgamer198]

Go to an ENT...could be a chronic sinus infection or something.... that could be just as dangerous as any other disease... I say this because I was having a constant sinus drainage problem this whole semester and it turned out every single one of my sinus cavities were infected (no thats not a symptom)... I had surgery yesterday...I can't breathe through my nose at all..but it's been a blessing in a way... I had that fear of bulbar too..but not being able to breathe through my nose...I can still swallow food and drink just fine...To Zak... you're fine man... But still...get the mucous problem checked out by your PCP or an ENT...some good 'ol antibiotics might fix the problem... )

 

[MitchM]

nc guy: yeah, going back to doc tomo. I know it could be a number of things. Dont know why I assume worst.