Debunking Common Lung Cancer Stat

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MarioMasher

Well-known member
I've seen that stat before, and I know it has been debunked by someone a lot smarter than me. Dig around in the archives, this isn't a new topic. I seriously doubt we are all walking around with undetected lung cancer.
 
Here's a thread where they discuss the link between twitching and lung cancer. You can read through it if you want, but it generally boils down to this:1. Just because some PNH symptoms can come up with lung cancer, that doesn't necessarily mean they are the PNH symptoms we have. If a doctor suspected you had cancer, you would have been tested for it. Doctors look for more things than you think.2. You would probably have more cancer symptoms than just muscle twitching. Lung cancer (like ALS) is an aggressive disease. After 3,4,5 months you'd think you'd have some breathing issues or a pretty serious cough or chest pain. My mom had lung cancer and she had a nasty, nasty cough that was pretty hard to miss.3. In the many years that this site has been up, there has not been one anecdotal case where someone went from BFS to lung cancer. Not one. As in zero, ever. In fact, according to the message board archives, there was never one case over on braintalk among its members either. Obviously you can't account for everyone who has ever posted here, ever, but you'd think if there was actually one then we would have heard about it.Anyway, here's the discussion. Like I said, this is not a new subject around here:
 
well on the website they speam about a relation between twitching and all sort of cancer, mainly lung cancer but not only...they say that the bodys reaction aims to destroy the cancer but finally attacks the nervs by error. sounds rational to me. but mainly lungcancer has got other symptoms...
 
Yeah its quite known that neuromyotonia (sorry if its not in english) is often paraneoplastic, thats why I asked my doc to check tumourmarkers in my first bloodtests. Fortunately it is real nerve damage and can be seen on EMG.BTW CautiousExplorer - I dont really mean it, but you were strictly against "scary" topics about ALS / BFS and now you are posting to public that twitching can precede cancer?! Hypocrisy :D)
 
I was a smoker for 15 years and quit 3 1/2 years ago. I think I'd have some sort of cough, etc. by now too. My grandmother passed away from it and it was quite obvious; coughing up blood and such. It works pretty fast. She as diagnosed and within 3 months or less, she passed. I do also know a 35 year old that had cancer rampant through his body..it spread to his lungs too and within 4 WEEKS of diagnosis, he passed too. BUT he had other symptoms as well. Your breathing would be affected in SOME way or another. Interestingly enough, cancer doesn't scare me. I actually have friends that obsess over it - my dad does a little over pancreatic cancer and well, I just choose the degenerative muscle diseases to focus on!
 
I guess i owe you guys an apology.. 90% of the time, i think rationally.. and it went so good for 3 months after my clean diagnosis. Now i seem to fall back into the abyss :crying:
 
No apologies necessary. I too, have fallen into the abyss, as you put it. Be happy you're 21! I'm 35 so I'm still considered young - yet almost to most disease age groups if you know what I mean! ;) I try and be helpful towards others yet do a good deal of freaking out on my own. I haven't had tongue twitches yet I have been googling them like crazy since I'm convinced it's about to happen any minute now?? I lookl at my tongue incessantly, it's ridiculous! When i get a little facial twitch around my mouth, I'm like, was that my tongue?? and run to the mirror. My neuro looked in my mouth twice in January and said everything in there looks great and healthy yet ever since my clean limb EMG two weeks ago, I am now fixated on my face/mouth/tongue. What a frickin nightmare!!
 
:LOL: See anyone on this site or any other site where they discuss BFS come back and say they have lung cancer? See ANY studies by the mayo Clinic (including that LONG study they did for over 7 years last year) say ANYTHING about ANYONE with BFS getting lung cancer? I've had this stuff for almost 10 years now.. no cancer... and EVERYONE I know that has had it for MANY years has no cancer. It's just more crap that dumb asses spread around that poor people believe because they are just LOOKING for something to make this all dooms day. My god, what's it going to take to make everyone understand that BFS is freakin BENIGN!!!! :rolleyes: Next, some idiot will be spreading bogus statements around that people who have migrane headaches get diebetes after 4 years. Well? Migranes are about as random as BFS and about as UN related to diabetes as BFS is to lung cancer. Quit LOOKING for stuff on BFS. There isn't going to be any new information on it, I can guarantee that. We've been following it WAY too long to find out anything we don't already know (other than the actual cause and/or cure). Other than that, we sure as hell aren't going to be finding out that people with BFS after 4 years get lung cancer. A rash can be a precurser to cancer in the body as well, so can Thrush and many other common immune related symptoms, but do any of you freak out every time you get a heat rash, thrush or a canker sore? I'll bet that answer is no.You hold the cure to BFS in your own head. You also hold your own nightmares. If you go looking for dooms day, some ass hole will be glad to "create it" for you. There are LOTS of ass holes on the internet if you go looking for them and the CRAP they post. Isn't there enough doom and gloom going on in the world than for you to go looking for more? Take the info we have already (the REAL info that I, Gary M and other long time "experts" have compiled) and use that to help you get over your fears instead of looking for new posts. Doctors contact us for information on BFS. Does that tell you anything? Doctors also come on this web site for information on BFS. Does that say anything about the validity of the info we have compiled over the past 10 years? As I said, there is going to be no new information other than what we already have in "BFS in a Nutshell" or in the post titled "Why you don't have ALS I & II".Quit freaking yourself out over something that's benign. That's as crazy as freaking out that you have a brain tumor every time you get a simple headache. How many people do you know that get occasional headaches? Now how many people do you know that actually have a brain tumor? Is it really justified to worry about having a brain tumor every time you get a simple headache? NO! Is it justified to worry about BFS when we KNOW it is benign? NO! So quit looking for something out there to prove us wrong or to find new related symptoms / causes / related diseases claimed to be caused by "twitching" or BFS. This ain't our first rodeo, and the Mayo Clinic backs EVERYTHING we have said all along 100%. It doesn't get any more clear than that. if we had found that BFS'ers (even a small percentage of them) got lung cancer, and we were able to link their cancer to the BFS, we'd certainly have warnings for people to go get annual lung check ups and cancer screenings done. We don't have anything like that on here because there is no such thing to even point us in that direction.There are LOTS of odd little symptoms that certain cancers causea body to do, and there are also cancers that get to stage 4 before you even notice a symptom. BFS is NOT one of the symptoms and "twitching" isn't either. PN MIGHT have some relationships on SOME cancers, but not all, and certainly not in every patient. Everyone reacts differently. For every person you hear about that found colon or liver cancer early, you'll hear about someone else that had ZERO symptoms and died 2 weeks after they found out it was at stage 3 or 4. Also, EVERYONE gets PN (pins and needles, temporary numbness, tingling, etc.) from time to time. It is NORMAL. Not everyone is 100% perfect all day, every day, year after year. Just remember that.... BFS is BENIGN and it's OK to twitch. EVERYONE twitches throughout their life. Some more than other, and other's more than most. Either way if there is no underlying disease (such as ALS), then it's benign, end of story.
 
Thanks Alonzo for a great post. Now, could you PLEASE ease my mind a bit?? :oops: So I had a clean EMG for my limbs. Now I'm having trouble not thinking my tongue is getting too big for my mouth or that I just slurred the word "suggestion" when talking to my husband. I burnt my tongue yesterday on a very hot piece of pizza so it feels even more sensitive today. I've been performing tongue strength tests - I think someone else mentioned they were doing this too (occasins?) Anyway, I've been performing strength tests all day long. It's insane! I don't buy into the cancer stuff nor does cancer scare me. Degenerative diseases are my devil's workshop. Were you a BFSer that went thru any scare that made you think the worst? Did you have an EMG? Do you have any further advice for the anxious folks that think they are presenting bulbar symptoms?? I get a random facial twitch here and there and can't seem to not focus on it. I was doing so great after my clean EMG. Incidently, did you know that EMGs done on your hands and arms don't detect upper motor neuron diseases?? Do you know their purpose? Rambling. You'll probably tell me to re-read your post..
 

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