I am laying on the couch and often when my legs start to really get back, I check on here and the web. I beat myself up for not cutting out all caffeine and make some solemn vow to do so, to relax, calm down, etc... and wonder why there isn't more support for BFS.My mind goes to "what if's" when I think too much about the twitching. "What if..." I have some cancer, real bad disorder, etc... then of course, makes the anxiety go up and the BFS worse.I just wanted to post, wishing there was a "magic pill" to make it stop.Thank you so much for having this site. It has to be the #1 site for BFS.
Dealing with BFS Worries and Caffeine
- Thread starter NailzHH
- Start date
Guess I'm stuck with my "Aw ****, Not This Again" guy avatar."There's a little of the Baron in all of us."Just getting labs back today. Indicate still elevated CPK, the tech said 370 (I think). The doctor's have no idea. I'm wondering if caffeine can increase CPK, but couldn't find much on it. I did have gastric-bypass surgery 3 years ago and wonder if there's a nutritive malabsorption that they're not picking up.
bdaddyjohnson
Active member
Is this something that is checked in standard blood lab work or do you need to ask for the test? Are elevated levels of CPK a cause for twitching?
StacyDance
Active member
My husband had a bout of viral myositis, which they think was brought on by a type of flu or virus. His CPK levels were 2700. He was so weak he could not even crush a pop can. Your CPK levels are elevated, but definately not at an alarming level. I think they want them 240 or under? Were they higher? Are they suggesting that you have them tested again? We tested my husband's every 3 to 4 days to make sure they were coming down. They finally did. With all of the muscle activity and twitching for people with BFS, it would hardly be unheard of to have elevated CPK.