melyssa221
Well-known member
i have had BFS over 2 years now.. been through everything trying to get rid of it.. somethings i have found to be good and somethings i have found to be dangerous
GOOD
1. ESSENTIA water, pedialite, electrolite water without sugar SMART WATER..est
2. epsom salt bath everynight.. throw the whole 4 lb bag in the tub with a few drops of lavender. (especially for those who work hard labor jobs)
3. klonopin. the only drug i have taken out of many that actually helped my symptoms. ( though i never tried beta blockers)
4. Massage get one at least once a month it removes all the toxic waste from your muscles and it feels great.
5. light therapy. lay out in the sun or go to tanning beds. (especially those with bfs that have popping and snapping joints.. for some reason it has helped me tremendously,,must be a vitamin d thing)
6. B-12, folic acid, b-1, vit E ( please consult your physican and have your vitamin levels checked before doing this you may find that your deficiant in one of these like me i was low on B-1 now since taking it the buzzing and tingling have greatly improved)
7. Sam-e ( if it doesnt help your twitching it will help you cope better with BFS especially for those who find this condition mentally challenging..)
8. Sexual Intercourse or love making ( the only time that im free of all BFS symptoms..)
9. Vacations.. taking a break from life ...especially vacations involving the Ocean,, warm weather and swimming...sunlight
10. being around family and loved ones.. i found that being alone or by myself makes me ponder more on my illness. having someone there who understands what your going through is most benificial
BAD
1. Vitamin B-6 ( to much is toxic to the peripheral nervous system)
2. Creatine powder ( can cause liver damage and nerovascular problems)
3. coffee (Caffiene) hard to avoid but tempting especially carmel mochas
4. Anger or stress ( duh! )
5. Herbal remidies like valerian root , kava kava ( herbs need more reasearch to be proven safe alot of herbs are unregulated and could cause more harm than good)
6. Fast food ( dont eat this crap! eat healthy youll feel healthy)
7. alcohol ( may provide relief but just wait till the next day )
8. SSRI s drugs like paxil or zoloft can make your bfs symptoms worse. i was having seizure like attacks and myoclonus.. bluck
)
9. THC ( this one is hard,, sometimes it amplifies internal stress.. sometimes it does the reverse)
10.Most Doctors ( they just dont get it and ussually will blow you off. Just keep hunting until you find one that is willing to work with you and try new therapies,, find one that is intrested in your BFS and will read your little print outs. one that believes you)
GOOD
1. ESSENTIA water, pedialite, electrolite water without sugar SMART WATER..est
2. epsom salt bath everynight.. throw the whole 4 lb bag in the tub with a few drops of lavender. (especially for those who work hard labor jobs)
3. klonopin. the only drug i have taken out of many that actually helped my symptoms. ( though i never tried beta blockers)
4. Massage get one at least once a month it removes all the toxic waste from your muscles and it feels great.
5. light therapy. lay out in the sun or go to tanning beds. (especially those with bfs that have popping and snapping joints.. for some reason it has helped me tremendously,,must be a vitamin d thing)
6. B-12, folic acid, b-1, vit E ( please consult your physican and have your vitamin levels checked before doing this you may find that your deficiant in one of these like me i was low on B-1 now since taking it the buzzing and tingling have greatly improved)
7. Sam-e ( if it doesnt help your twitching it will help you cope better with BFS especially for those who find this condition mentally challenging..)
8. Sexual Intercourse or love making ( the only time that im free of all BFS symptoms..)
9. Vacations.. taking a break from life ...especially vacations involving the Ocean,, warm weather and swimming...sunlight
10. being around family and loved ones.. i found that being alone or by myself makes me ponder more on my illness. having someone there who understands what your going through is most benificial
BAD
1. Vitamin B-6 ( to much is toxic to the peripheral nervous system)
2. Creatine powder ( can cause liver damage and nerovascular problems)
3. coffee (Caffiene) hard to avoid but tempting especially carmel mochas
4. Anger or stress ( duh! )
5. Herbal remidies like valerian root , kava kava ( herbs need more reasearch to be proven safe alot of herbs are unregulated and could cause more harm than good)
6. Fast food ( dont eat this crap! eat healthy youll feel healthy)
7. alcohol ( may provide relief but just wait till the next day )
8. SSRI s drugs like paxil or zoloft can make your bfs symptoms worse. i was having seizure like attacks and myoclonus.. bluck
)9. THC ( this one is hard,, sometimes it amplifies internal stress.. sometimes it does the reverse)
10.Most Doctors ( they just dont get it and ussually will blow you off. Just keep hunting until you find one that is willing to work with you and try new therapies,, find one that is intrested in your BFS and will read your little print outs. one that believes you)