Crazy Twitching and Cramps

[ySplendidCrafts9]

I am getting all crazy again.... I just don't know what is causing all this twitching and now I am getting a lot of cramp -like feelings in my legs, hamstrings, calves and shins right now. They are just crampy and ache and this really scares me, of course b/c you hear the horrible disease involves cramps! It is so hard right now to be logical and tell myself after 8 months I would have weakness, but b/c this past month I have been getting real crampy legs, is it now starting to progress? or is it just good old BFS?? Do others get this muscle pain/crampy feelings in their legs? Even when they are siting? How can this be nothing??

 

[BarbiePetals]

It's funny you posted this today cause this just started happening to me. I have been getting pain my my legs. Not cramps but just a achiness feeling. I don't know what is going on but suddenly I'm more worried about this than the twitches. Your not the only one. Simon just mentioned after 11 months he started to get cramps also. ~Leslie

 

[Krackersones]

After 14 months of twitching and no weakness, I have had crampy feelings and some actual cramps from the beginning. I had achy legs for years even before the twitching. I teach and stand all day so I just attributed it to that. Remember cramps are common place. If you have nerve issues of any type you are bound to have some crampy and achy feelings. They just go together.

 

[ySplendidCrafts9]

I know, but it is just a bit painful now. I get really scared with this, b/c I am not on my feet all day and so have no reason why all of a suuden my calves, shins, and hamstrings hurt. They seem to be getting worse as the days go on. Is this a sign of that dreaded disease?? I mean would both legs hurt? I have been getting a lot more twitching in my calves now too.

 

[LaurentHCH]

chez, during bad periods of bfs i have had this crampy feelings and stabbing pain in my feet, calves, hands and tighs too, on and off. it scares me the hell. however when my twitching seems to be less, also the crampy feeling ceases. it is part of the bfs package.

 

[Krackersones]

I have been reading a bit about fibro. All of these symptoms fit that diagnosis. Whether you believe in it as a distinct ailment or not, it shows that there are a lot of non-ALS patients with these same symptoms. At least in the U.S., you frequently see ads in mags and on TV about fibro. I doubt money would be spent on these ads if it was not a common problem.Krackersones

 

[TimThomas24]

Chez- No need to worry about this at all. I'm one of the ones who have had the leg pain and cramps from nearly the beginning. Mine started with twitches and then in week three I had tightness and aches and cramps in the calves and hamstrings which got so bad I felt like I could not walk. You can imagine my fear of serious progression. Then they passed in about 3 weeks (right around when I got the clean neuro exam). They came back 8 weeks later and I had a two period with the bad leg pains again. That one also passed. Then about 6 weeks ago, I had another flare up. I'm not on my feet either. I could literally feel it getting worse sitting at my desk. Left calf, then left hamstring felt like I had a knot inside of it. Its just this weird feeling of transient crampiness, pain and irritation. It has now passed as well. This is nothing to be worried about. Give it time to pass and stop worrying about it because this will only heighten the symptoms. Lastly, try staying active. The worse thing I did when mine flared up was rest and stay off my feet thinking I needed rest. I've found that if I ignore the aches and near cramps, and stay exercising (albeit making sure I stretch and cool down) I end up feeling better much quicker. Its definitely part of BFS and makes no logical sense to be associated with what you're fearing.

 

[ySplendidCrafts9]

Thanks everyone! I was at an amusement park all day today and my calves, shins and hamstrings hurt. It was like they would migrate all over at different times. They hurt while I sit here too. It is just hard for me to believe that there is no reason why this is happeing to me.Jro, as far as the Fibromyalgia thing, I saw the same commerical for Lyrica were it says Fibromyalgia can be caused from hyperactive nerves. I thought you needed pain all over and those certain spots on your body. When I went to a rheumi a while back he didnt believe I had that.On another note; did anyone have trouble logging into this site yesterday??

 

[GandalfTheWhite]

Hi!Casually, by the moment you opened this post, my legs had just started having these same sensations, mild cramps, achiness feeling and tiredness, in my case this happens mainly in my thighs. Since, these sensations have been intermittent: "jumping" from one leg to the other, affecting almost randomly thighs, knees, calves and even feet.When the whole twitching package started for me, more than three months ago, I soon had similar sensations, which took about two weeks to vanish. Now I'm having them again, for a week already, but I think today they don't seem so strong (let's see).Two weeks ago I started noticing what for me was undoubtly a throat problem. I felt a lump in my throat, so notoriously, that I couldn't believe it was just something caused by stress or BFS. I was really concerned and couldn't figure out how that should disappear. Guess what? The lump sensation is gone... and it may return in the future, but I will already know that it isn't anything deffinitive.Just read what TMJ has said about his experience, that should make us all feel confident. I guess that we must accept that our symptoms fit 100% with something called BFS. They may fit 30% with other dreaded diseases symptomatology, but that shouldn't send anyone in this forum right into panic.The only thing panic could bring is more panic, to everyone.Finally: Yes, I was unable to log in yesterday.

 

[AllGoodHere]

Personally, I hate having these crampy muscles. You would think, hmmmm this started like almost 5 years ago I should be used to it by now. But I never had it before then, and even though supplements help it can still be a struggle some days. As TJM said - wrapping your mind around it is the hard part - accepting that it's not going away and you need to learn to deal with it. The thing that works for me the best is meditation and just plain mentally controlling my state of tension - staying as relaxed physically as possible. This is not an easy thing if you like being a physically active person. Yogis and tai chi masters spend lifetimes perfecting this (relaxation while moving and simultaneously exerting force) so it is not something easy to attain. However - you can see that people at the top of their profession in sports and dance often have this look of relaxation when executing outrageously difficult maneuvers - how they make it look easy - so it IS attainable with lots of practice. However, I find that most people here choose to dwell on symptoms, working themselves into higher and higher states of tension, and say that this is not an actual choice but that it just is. Maybe it is for them, but I believe that most people have an option to choose another path. It is, however, not an easy fix and perhaps one that people have to work up to over time as it takes a lot of personal responsibility. The long view, huh?The pharmaceutical companies love it when you talk about their products as if they were a solution.