Coping with BFS Symptoms

[ChrisSwiftly]

Hi
Please don't worry, these are tipical symptoms of this stressing condition bfs.
I have the syptoms you have and it,s not nice . you will start to have more good days than bad very soon, only if you stay positive. This thing plays mind games, the better you cope mentaly the more strength you will gain physicaly.

I have or had the exercise intolorance you have and sold my bicycle thinking i would never ride again. But now 22 months later i am on an excersise bike doing half a mile a day and ready to do a mile.
(Two weeks training)

Half a mile to some is nothing and many may laugh, but this time last year i would not be able to turn the pedles at all. Little and often thats how to beat this cr*p honest. Don't give up and don't do to much.

If i do to much i get the thumpers, so like i said little and often until you body is reday for more.


Good luck
Chris Sewell

 

[johnsoncarter]

I would appreciate your feedback. In addition to feeling awkward my right leg feels as if it is "catching (not from the knee area but the entire leg) and as if I have to volitionally pull it forward (not from the knee area but the entire leg) in order to ambulate during the early phase of walking or jogging but does feel better and move more fluidly the further I walk. As mentioned there appears to be no loss of strength or overt signs of atrophy in this leg just alot of anxiety regarding this symptom. What do you think? Thanks, Carl

 

[LisaQ.]

Hi Carl,
All I can tell you is that sometimes my entire leg would give out and buckle at the hip or knee, and I'd have to catch myself from falling. The rest of the time, I had a sort of chronic pulling, weak sensation in my hip flexor muscle that made it very difficult to walk without thinking about walking, if that makes any sense. This same sensation then moved to my hamstring so that I couldn't depress the brake pedal while driving. (Actually, I had both at the same time for several months.)

I'm not sure if this describes your situation or not. It would switch sides from right to left, or I'd feel it bilaterally. Pretty much in the beginning, I was just a train wreck and every limb was dysfunctional.

I seriously shuffled around like Frankenstein for about two months.

My husband had the exact same thing, only his wasn't as bad.

I'm not sure if this helps you or not, but perhaps it might ease your mind a bit.

Blessings,
Sue

 

[johnsoncarter]

Your detailed description above seems similar to my symptoms. My concern is that I experienced these symptoms prior to the onset of the fasciculations. In addition, if my recall is accurate (at my age I can't be certain ) I believe that I experienced similar symptoms in my left leg over a year ago. Due to the nature of my work I remain seated for many hours each day while working on a computer and recall about two years ago when I stood up I could not feel my right leg at all! I was in a panic but over a period of fifteen minutes the leg returned to its normal self. Subsequently, I experienced the same symptom in my left leg. My Physical Therapist indicated that by sitting on a couch for prolonged periods of time probably resulted in a compression of the nerve leading to these sensations. In addition, I am wondering if the forminal narrowing of the cervical area and removal of significant cartilage in both knees is contributing to my symptoms due possibly to the heavy weight lifting over the years? I also notice that when I sleep face down with my head/neck turned to the right side on the pillow or when I am sleeping on my back the fasciculations go wild while lying on my stomach with my head turned to the left these symptoms abate!

Regardless of the awkward feelings in my right leg does the fact that I have retained full strength in the leg with no overt evidence of atrophy take precedence over my perceptions of weakness? Thanks again.