Constant Twitching, Freaking Me Out

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Gloria123

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I am really struggling with my twitching. I think it's gotten worse. It used to be a twitch about every 10 seconds or so, but now it's constant twitching when I sit down or lie down (like 1 twitch a second), and sometimes when I sleep, or sleep badly, I should say, I have the whole machine gun firing going off on my legs/feet. It's really freaking me out. I have my clean EMG (I had fasciculations on it) but it's really hard to relax about this, when it's so bad.Does anyone have any suggestions of what I can do? I really should get my thyroid, etc., checked out, but the doctor appointments have been stressing me out so badly, I just want a little break. Plus, I figured if I had problems with my thyroid, I'd really have some other symptom other than muscle twitching (maybe not - I'm not a doctor).This is psychologically grueling, because even though the various doctors were fairly confident that it wasn't anything serious, it's hard to imagine that this is benign and okay. I'm pretty sure you all know what I mean.Has this ever gone away for anyone?I had a couple glasses of wine on Saturday and the twitching slowed down nicely, but it returned with a vengeance both yesterday and today. I burst into tears yesterday (again, in front of my kids) because I was trying to hang out and act normal with them while my calves and feet were going crazy. It's really hard.I would seriously try any remedy at this point. I've been searching the boards, but everything seems to affect people differently. And, I'm not very eager to go on any hard-core meds (like Neurontin, for example).Sorry to keep complaining and whining. I guess it's only been two months for me (almost 2 1/2) and it's really hard. Again, if someone could absolutely assure me this wasn't anything serious, I think I would learn to live with it. But, my doctors seem evasive, probably because they don't know what is causing it, and it's new and fresh and I'm still really scared.Mitra
 
Hi Mitra...I'm really sorry you are having a hard time rite now with all of this...it is very overwhelming in the early days...I think my kids forgot they even had a mother for 6 months when I was going through the early days with all this...I was just not a participating family member..it was just so hard and I was so wrapped up in my head with what were these symptoms and what was causing them...and my docs were quite withdrawn with me as well for what I am assuming was just for the reason you stated...they really had no idea what was causing all the craziness...but they knew what it wasnt and in time that was good enough for me to start to get a handle on things and my anxiety...once that happened..many of the twitches and other symptoms started to calm down considerably....These days my twitching is mild (but still there), I have muscles that still fatigue a bit quicker and get sore easier, but I'm in no where near the pain I was in last year, and the sensory symptoms are nearly gone most days...so things have improved tremendously and I have high hopes they will continue to do so....I really hope you can except that this is a benign condition so you can start to get your life back and enjoy those babies....I'd give anything to make up the time I lost with my husband and kids that I lost worrying last year...so not worth it.Take careRobynn :D)
 
Thanks so much Robynn. I'm in tears reading your post. You're so right, that I shouldn't be wasting my time worrying, and shouldn't lose any precious time with my children. I just really hope that I get to the point where you are, and can accept this and make it more of the background in my life than the foreground.I really appreciate your feedback. It was just a really bad night last night, and I didn't sleep, and all I did was twitch and have nightmares. Awful...Mitra
 
Hi mitra, Im so sorry your struggling at the moment..I know u don't like taking meds but I take one called restavit, it's a natural medication it's available across the counter at the pharmacy it's a sleep aid...it's fabulous..I sleep for about 6-7 hours once I've taken one..I find if I have a good nights sleep the twitching and all the other rubbish doesn't seem to wear me down so much....My feet were machine gun twitching like mad yesterday they almost felt like they were bubbling in a pot it was that bad...but I just tried to stay calm and switch off to them...u know what they eased off then my back was tapping away for about 3 hours :LOL: ..u can't win with this....and your not complaining or whining in my opinion..this bfs stuff takes a while to get your head around and your still really new to all this...give yourself time..it does get easier..I promise...and drs don't know what causes it that's frustrating too for us...I say stress, anxiety..burnout take your pick...we should all run away to a tropical island, sit on the Beach in our bikinis and drink.....while our hubbies watch the children...That sounds better than sitting stressing about benign twitches....I hope u have a better day...best wishes shannon
 
I love that idea, Shannon! How about Fiji - that's kinda halfway between the U.S. and Australia?!?Thanks for the OTC medication advice. I'm looking to wean off Ambien and Xanax to help me sleep....You're full of wonderful comments and advice as usual!Mitra
 
reading all your post, it makes me feel like there are people like me! my calves are constantly going off with the twitching and its sooo hard to maintain a normal life when all you could thing about is twitching!
 
I hear ya Luluq07! This is a disorder, that while benign, it seems like SO many of us have a hard time wrapping our minds and accepting that it is. It's because our bodies are really kinda out of control. And, while I get it that there isn't much research into this, because it is something that is "benign", maybe someday the doctors/researchers will be able to look into this more and how to identify something that really helps us stop twitching.
 
A www thank u mitra for the lovely post I try and help because I know how irritating twitching is....my feet are absolutely driving me batty tonight I would dearly love chop them off at the moment...but I would have a lot of trouble walking on my twitchy knees.....yeah Fiji sounds good let's take mommyLDN and Chrissi and Ashley...let's take all the girls..... :LOL:
 
Oh, Fiji sounds so nice:) But I think I will need some more abdomen-twitches to strenghten my belly so I look good in my bikinis:)Seroiusly mitra, I'm sorry that you're going through this. All this twitching can really drive you mad, but, it's BENIGN, really. That's hard to believe, isn't it? IThere are still some days I look at my calves and arches of feet and think "how the **** is THIS supposed to be benign?????". :sick:
 
Yes, if I could get all my twitching to leave my calves and go to my abdomen just in time to get in a bikini for Fiji, that would be great! :)One thing that particularly drives me nuts is the fact that I twitch the minute I wake up in the morning. It's like my body saying "hello - you were dreaming and forgot all about your twitching! Here's a nice reminder that you twitch!!". Really kind of depressing.I have been a nutcase over reading everyone's solutions to their twitching and trying to find something that might actually work for me. I think my best peace of mind is if I could get this to stop somehow, but it really doesn't sound very possible.Alright girls - we might have to have a yearly BFS twitch-reunion in the tropics somewhere! Makes me smile... We could all sit around and drink fruity drinks and watch our calves and feet twitch.Mitra
 

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