Concerned and New With Twitches

[YodoTribbles]

I am new here and concerned. I have twitches all over that come and go. I am curious what yours feels like and how long the actual twitch lasts. One second,two seconds ect. Also is it like a little tug or faster. I am not so concerned with the widespread ones but the one that hung around so long.I had one next to my lip for 2 months and am trying to decide if it was a true twitch or a oh I can think of the term myoclimia (something like that). It has since gone away now for about four months and hasn't returned(knock on wood).Mine lasted maybe two to three seconds and was like a few little tugs then it would go away and would usually happen while brushing teeth or just resting. Is this a true twitch? Any advice would help. Thanks.

 

[EyeoftheWild]

Hi jilly,

Very typical of BFS. Read the other posts and you will see that these are all very common symptoms. Definitely not something to freak out over. There is comfort, concern, and knowledge here; I trust you will find help.

Cheers,
Basso

 

[totaltwirls]

Hi Jilly,

You are not alone with these symptoms. I have had every kind of twitch. The quick one that almost feels like something is poking you. The quiver that lasts a few seconds and the finger and toe back and forth twitch (which were at the very beginning of my symptoms) and let's not forget the popcorn kind, particularly in our calves. I have had an eyelid twitch now that has been going on for 3 weeks. If I blink hard, I can trigger it. It lasts for a few seconds and then goes away. Sometimes my husband or kids notice it when i say "look" and sometimes I can just feel it but they cannot see it. Hang in there.

 

[BandersnatchF]

According to a neuro I saw for a second opinion, having your muscle stay contracted for a few seconds after exertion is (don't worry - nothing scary here). In fact, the NIH page notes that myotonia "is a symptom commonly seen in patients with myotonic muscular dystrophy and in a group of disorders called channelopathies...." Since there's evidence that BFS is (at least sometimes) caused by potassium channel antibodies, it wouldn't be surprising that myotonia is a potential symptom.

BTW, my neuro also said that twitching after exertion can also be a form of myotonia. One clue that this might be the case is that myotonia typically decreases in "warm" muscles, so if you get twitches from a quick exertion but not extended exertion (think quick hand grip and release vs. holding a bag for five minutes), it might be a form of myotonia.

 

[BandersnatchF]

many many people here are reporting twitching after flexing, tensing up etc. It´s VERY common in BFS and it hasn´t nothing to do with als and nothing with myotonia ore other diorders.