Chronic Lyme: CD57 Test Results

Highlights Only
N

NordicPrincess

Well-known member
as some of you may have read I have received a CD57 test result and more tests that can be interpreted as chronic Lyme.. i know i had a tick bite with a red ring around last summer.. i'm waiting for more results and the professors opinion about it, and i`m going to the Norwegian Lyme senter in sept for more testing..i have read a lot about Lyme since i got the results. all the symptoms of BFS stand in the symptom list for Lyme as well..and remember no Lyme tests are 100 % right, in fact the Elisa methode used in many hospitals are very debated...not very precise.. i read about a girl in the local newspaper today with a story like mine! and she had been to the same hospitals i have, the same testing... until she came to the Lyme clinic for more and better testing, they found Lyme and she is much better now after 6 weeks with three different antibiotics..has 6 more weeks to go and then maybe intravenous antib...i have read several other Lyme stories that are so like my own.. have the possibility of Lyme been discussed here? have many of you taken advanced tests? tried long term antibiotics? all of these symptoms, they are because of something!.......
 
I think many people here have been tested for it, it is a topic that comes up often here because chronic lyme can make exact the same symptoms as BFS. I think in your case, not mainly the discusseable CD57 but the whole picture of your bloodwork together with the tick bite might point towards lyme . I wonder why you haven't been put on antibotics then :eek: Here , if you get "the rings" they put you on antibiotics right away without even waiting for blood results.
 
You aren't the first person to suggest that BFS=Lyme. However, in my five years on this board I have never seen another person actually diagnosed with Lyme (and believe me, a lot have been tested). So I am guessing that in 99% of the cases of BFS, this line of thinking will go nowhere. Personally I live in California and we don't really have ticks or lyme here, so I have never been tested. It would be a waste of time and money.
 
ok, thank you. thats a sad thing christinasgirl123. many doctors put you straight on antib, they are supposed to do so. but mine told me it wasn't nescessary if i didn't get sick and the ring was not so big...i got extremely dizzy with headaches aftee a few mounths but i have had that earlier in my life so i didn't thought about the tick bite then..was so busy with job and a litle kid and didn't know much about Lyme... :(
 
I have really wondered about Lyme, especially because of the multitude of symptoms I have that came on very suddenly. My neuro tested me for it but it came back negative, however I wasn't really expecting a positive even if I had it because I've read that most tests come back neg unless it's an IGNEX test (which it wasn't). When I first asked online a year ago about my symptoms, the first response I got from people was that it sounded like Lyme. My goal is to rule out everything else (MS, PD, Thyroid, Cancer etc) before I settle on Lyme and trying to treat it. Also, I never remember having a tick bite or a bullseye rash -- however I used to go hiking every weekend growing up, so who knows. I'm glad you figured out what was causing your twitching! You give me hope :)
 
I was tested and it came negative, but In the past I was bitten by a tick and actually got meningitis. Few months back I was on antibiotics for over 2 months and never had any positive change:/ but I never tried 3 different at once so who knows?...
 
thank you. i'm waiting for more testing so nothing is sure in my case yet. expertsxis clear that if lyme is a possibility more than one test is nescessary.
 

Users who are viewing this thread

Total: 1 (members: 0, guests: 1)
Back
Top