Chronic Body-Wide Twitching for 18 Months

[CrazyMonkeyJordan]

I have been twitching body-wide for over a year and half. Started in my left hand, went to the whole left arm within a month - then body-wide.I have seen several neuros, had an emg on the left arm and been told it is bfs. About a year into this - it went to my tounge. Over the last few weeks - it has been more frequent and it bothers me. While I just saw the neuro again on May 10th, 2010 - and told him about the tounge - he said it is benign - yet I don't know why I can't put this behind me. While I twitch in other places, I cannot accept that the tounge can be benign and just like the other twithing. I don't know if I read some bad posts online early on or what.Can anyone with tounge twithcing respond with your experiences so I can try to put this behind me...Thanks!

 

[JoggingCub]

Though I have not had a tongue twitch, a lot of people here have, just seems to be another part of BFS. Unless you have something else going on that you did not mention (like difficulty swallowing, slurred speech and excessive drooling), a twitching tongue is nothing. The fact that you have had body wide twitching for a year and a half with a clean EMG and have not developed anything else means you are clear, if pressed I'd even put $$ on it.

 

[Krackersones]

I do not have a lot of time to respond but the tongue issue is a big one for me because I've dealt with it from the onset two years ago. Search my posts for the word tongue and you will find a lot of info. By the way, how would you describe your tongue issues? I am always curious how others experience this aspect of the condition.

 

[CrazyMonkeyJordan]

My tounge twitching is mainly in the tip, front left and right, twitches real fast for a few seconds, feels like it is buzzing and you can see it - comes and goes throughout the day, some days a lot, some days are much lighter, or I don't notice. I also get twitches in the right side of my tounge - can feel and see them - they are usually a single twitch, or sometimes goes a few times - they come and go. They have just been more frequent lately and it beats me down a little with worry.The first time I saw my tounge twitch was in October 2009, I know it has been happening longer than that - I was just looking in the wrong places. The Docs are not concerned about it - I just can't get it through my head that it is the same as the rest of the twitching I get all over my body.I also get the light tingles on the tounge that some people in this forum have described - can never see anything though.

 

[Krackersones]

cmjordan,Your description is very similar to what I experience. I don't look to see them though. I corresponded with a woman who has had them for 13 years. I totally understand the worry but it does makes sense that if something is effecting your nerves there is no reason for the tongue to be spared. If the tongue still functions, no one is really going to be interested in fully understanding the phenomenon. At least we have each other so we don't feel so alone.Krackersones