Checking for Various Symptoms

Interesting...considering I was discussing this twitching with my best friend and her sister chimed in "I didn't know you had Fibromyalgia too!". I quizzed her and she experiences EVERY SINGLE symptom I do. ~Frances
 
Lots of people think BFS is fibromyalgia. In fact I have always been pretty sure that BFS/fibro/chronic fatigue syndrome are all on the same spectrum (ie, the same thing just at different intensities). I also think Alonzo wrote about this in BFS in a Nutshell.In any case yeah it's not much of a stretch to think that BFS is just a less severe form of fibromyalgia. Which, if you look at the big picture, isn't really all that bad a thing in the long run. I mean, if we're gonna get one crappy chronic condition in life we might as well get the weaker one.
 
I agree with you, I guess the choice of it's name is made due to the symptoms that are worst...pain= fibro, fatigue=cfs, twitching=BFS....I was first diagnosed with BFS but are now positive for all Fibromyalgia trigger points and this pressure test, so I can choose if I want to call it BFS or Fibro. But I like the people on this board very much, so I decided to call it BFS and stay here :)
 
I don't know, but indeed I also have a lot of pain in my joints sometimes, and véry tired always.......But not all of the symptons are correct for me....
 
I agree with Chrissi. The people on this board are all pretty cool, if not generally a little nuts. But the people on the Fibromyalgia boards are all d*cks. I choose to align myself with this group. :D)
 
When i queried ME Chronic fatigue and Fibromyalgia my neuromuscular specialist said in his opinion none exist. He chose to call the spectrum of disorders post viral fatigue syndromes. :confused:
 
See I wouldn't disagree with that either. In fact that makes more sense than using three words to describe the exact same syndrome. You got a virus, your body went wacky, and now you are tired and fatigued all the time. And since the severity depends on what the virus was, everybody's symptoms might vary a little in intensity. That makes a lot of sense to me.
 
Hmm, but there are some blood tests showing typical changes in people with Fibro/CFS tart hat do not fit to an infection. These are not regular tests but only bloodwork comparisons done in studies, but I wonder if BFSers would show the same changes if they would do a study on people diagnosed with BFS. I agree that it might be brought on to some people by a virus, but not all for sure. If it was, why do 80% of all people with hypermobility syndrome (like me) get fibro, and why have many people that develop it a history of health anxiety? Why are more women getting Fibromyalgia that men? And why does it usually start in the 30's ?
 
I have a lot of pain in my joints, but not all the time etc......And that seems to be important for fybromalgie?I have my doubts, but I can't judge. PS fascics also for fybromalgie?
 
Lene, the joint pain is classical symptom of lyme disease. In chronic infection, it could explain also the fasciculations. However if you had them on the tongue, lyme is not likely as it rarely affects cranial nerves except for the fifth.
 
Lene, lyme disease usually affects trigeminal nerve, which is the fifth cranial nerve. It causes nubmness and sensory issues on the facial area. Do not know if you have tongue affected but if so (like me) lyme is not likely as it does not affect other cranial nerves. But I do not think we have lyme, it was just a suggestion as you said you have a joint pain.
 
Yes fibromyalgia has muscle spasms as a symptom, I doubt that a persistent infection with a virus left us with the symptoms it's rather a hit and run reaction that fell on proper grounds, immune dysfunction due to various causes including chronic stress. I have trigeminal nerve involvement but no Lyme on any tests. Let's just forget Lyme, nobody here had a positive blood test and got better with antibiotics.
 

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