Caucasian Race and Age - Disorder?

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TwitchyGambler

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That most of us are mid 30's and Caucasian. At least we all look Caucasian from our profile pictures and we are in our 30's or were when this thing started. It just makes you wonder if we are predisposed to this disorder due to race and age. My neuro thinks my problems stem from my great grandmother the Cherokee indian. My cousin's neuro from the Cleveland Clinic said something about my great grandfather from Germany. He was very arian. Very Blonde and blue eyed. Who knows.
 
No Indian blood here either...I am white/blue eyed and of Irish/Scottish heritage.The make up of this board according to the bfs survey is like 95% white which I find weird since America/ Western Europe is so diverse.
 
In my late 40's and with an irish/english/NZ heritage..and with brown hair...(well was brown before grey!) and brown eyes. Dont think it is age or heritage link. Certainly personality types may be pre-disposed however...cheersRodger
 
I just found it interesting that 2 different neuro's have said this is a genetic syndrome but blamed it on two different ancestries. My great grandfather was a first generation American from German who came to America as a child and met my great grandmother who traveled from Cherokee Indian Reservation – Nantahala River on a raft she had made herself. She docked in the Smokey Mnts. and that is where he met him. My dr. thinks I have Fibromyalgia even though I don't have chronic pain. He blames the Fibromyalgia on the Cherokee in me. My cousin who has the same great grandparents said her Dr said it was the nordic descent/German. Interesting enough, about 4 years ago I purchased my dad an DNA test from the DNA ancestry project because he was and is in to Genealogy. The results showed Indian but said he was of primarily Nordic descent. (Lots of English, German, Irish, Swedish) showed up. Note for those of you who don't know. My dad was diagnosed with BFS in 1994 or 1995 after 3 EMGs and all the MRI's. He was as scared as I was, only because my neighbor had ALS and the neighbor told him one of the symptoms could be twitching,( Thank God my dad didn't have a computer back then and no access really to the Internet) even though my neighbor didn't notice twitching until years into his disease. He lived 13 years with ALS and died from a blood clot after surgery. He was still walking and only lost one hand and slight other hand usage.
 
Originally blonde hair, with blue eyes. As far as I know, from one side of the family we are English/Irish descent, and from mothers side of the family, we are Cherokee descent. I believe I am 1/8. My mother was dxsd with Fibromyalgia 15 yrs ago. I have not tried to pursue a Fibromyalgia dxs due to the fact that I'm not in chronic pain either. :D)
 
I'm starting to think it's all about the blue eyes. I knew some day they'd cause me problems. Ive also got some American Indian (sioux) and German. But I have a little bit of everything in me so I probably don't count.
 
At Johnny999 .. 20 youre a young buck. My cousin twitches all the time and she is 22. Her mom said hers gets really bad and annoys her but she figures" I am 22 and nothing is wrong with me." Her aunt is the other that had it and went to the Cleveland Clinic. She is very blonde and blue eyed. Same g-grandparents
 
Just a few weeks shy of 34 when I got the twitching. Blonde and blue (though my wife would argue it's closer to brown). I just go by what my license says. To go further, low body fat and active. Do you think build/body fat has any connection? 185 and 6". Friends often make fun of my skinny " frog" legs. Not trying to get too personal, but curious to find any common links possible. It's only been about 3 months of twitching. Also have lots of random and intermittent aches in calves and feet where the twitching is. Feet also get cold and tingly very easily. Still can't convince myself it's not als. Do you ever get to the point where you don't constantly check your calves for strength??? Guess it feels like all that twitching should be wearing down on the muscles. Two neuros says its bfs (only first did an EMG) but it feels like twitching is getting worse. But I definitely notice a lot more frequent twitches all over the body now too (which sort of comforts me in some strange way - like it's too wide spread to be more serious - but legs still account for 90% of twitching). I'm in Africa on a business trip. Being away doesn't help anxiety! I'll prob end up in a mental institution before long. :LOL:
 
We all do the strength test. I know I can stand on my on one foot on my tippee toes for 46 seconds. I have actually gotten better at my balance. I also know that I can pick up a 5 pound weight with my pinky curled. I can also roll my tongue. Anyone who says they haven't done all the stupid strength test is lying. You bet your white a$$ that if you're on here you've got the fear of God placed in you that you have done ever strength test suggested. Yep I have even done the stupid stair jumps like that lady that writes the blog -Jullian Horton. She evidently has BFS and wrote about her hypochondria. Yes the twitching has a mind of its own and I remember when my first started I thought for sure I would be in a wheelchair this time last year. I lost literally 3-5 months of my life worrying like crazy about this syndrome. Cheer up its only BFS! I say this now but as soon as I have another hot spot you will see my :eek: back on here asking for support.
 
My twitching—almost seven years worth—is concentrated in my calves, feet and to a lessor degree thighs. I stopped doing strength tests about 5-years ago, and I do not allow myself to look at them anymore (calves and feet). When I get a new hot spot, I tend to focus on it and check it all the time, which leads to more anxiety.My job keeps me out of town half the month, every month. I definitely can empathize with the anxiety that that causes when dealing with this early on.
 
I was 31 when this all started. Brown hair and eyes. I do have German and Indian in my. Not that I think it matters. What I really think is the cause is that our 30's are a stressful time. Most of us begin to realize that our "younger years" are behind us, and we have wives/husbands, kids, jobs, big responsbilities. Because we care so much for our family when sometihng goes wrong we are internet savy so we consult google, then the downward spiral starts. Then you get stuck there for months. Over the period of those months you "reset" your body to thinking this is the norm. Then when you want to break that pattern it is very difficult. You almost need to have something jolt your system to get out of this, just like how you got into it. I do believe for most bfs was avoidable if we had learned not to add stress to our first twitching event. I do however believe there is a genetic component. Both of my parent have told me they twitch (my dad more than my mom). So I think we are predisposed to it, but we "unlock the key" that opens the door to this path. I do think that whites are more prone to this also. Again I am sure it's genetic.
 

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