Catching Up After 16 Months

[Pixeldusty]

Just wanted to drop in and say hey, after 16mths, still here. I see there are many new people on here and still some of the ole timers too. For all newbies, this board is a lifeline, a great place to vent, support-give as well as accept. I myself have never had an emg done. 2 neuro vists the last one being in Nov of last year. I twitched from head to toe and in between,(places I care not to mention..lol ) ) I still twitch, some days more than others and believe it or not, sometimes I don't even remember if I twitched the day before! Unfortunately or fortunately in some cases, other things pop up that put the negative thoughts about this syndrome on the back burner. Those thoughts still remain, linger about in the back of the mind and I try to keep them there.

I just want you to know that as scared and worried as you feel now, things will get better, even if the twitching never completely stops, you will learn to cope with this, learn to accept the reassurance of your dr. that you do not have ***, learn that life goes on, it really does with or without twitching.

Oh yeah, I can put this all out there now, but as sure as I write this, one day I will be posting my doubts again but I know the great people on here, the nutshell posts and all of the old posts will help me get through it.

You have BFS, you will get through this now get out there and live!! )

 

[EyeoftheWild]

Hello Dande5:

The last time we spoke we were singing a song from Mary Poppins. I meant to ask you, did you think MY singing was "really quite atrocious" or were you just joining in? I haven't even thought of my BFS since then because, to tell you the truth, I felt a little devestated to think that maybe, my golden tonsills were being criticised.

Let's try again, " Just a spoon full of sugar,".......... You have to admit, the sonority on that bit was "really quite amazing" ( sung to the tune of something quite atrocious)

Cheers,
Basso
PS: Great Post!!

 

[totaltwirls]

Thanks, Dande5. It was great to hear from you and that you are doing well!!