twilightkickball
Member
I hesitated before posting about Carolmarie, and the fact that it looked like her story was a fabrication. I really hated to accuse someone of lying, but at the same time she made me very angry by causing so much anxiety here, and on Braintalk.
Now I'm think about new people who come to this site. Will they go first to "Experiences with BFS" and read Carolmarie's story early on? Maybe the'll eventually find the later posts here and be reassured but in the meantime are they going to suffer the way many of us here did?
So I'm proposing that Carolmarie's post where she falsely said she'd been diagnosed with ALS, be removed.
This would be up to Alonzo, of course, who seems to be on vacation or something....but I'm sure when he returns he would agree to do this if there was support for it.
Who agrees with this....or disagrees?
Twyla
Now I'm think about new people who come to this site. Will they go first to "Experiences with BFS" and read Carolmarie's story early on? Maybe the'll eventually find the later posts here and be reassured but in the meantime are they going to suffer the way many of us here did?
So I'm proposing that Carolmarie's post where she falsely said she'd been diagnosed with ALS, be removed.
This would be up to Alonzo, of course, who seems to be on vacation or something....but I'm sure when he returns he would agree to do this if there was support for it.
Who agrees with this....or disagrees?
Twyla