Can't Shake Fears After BFS Diagnosis

JennFiction

Well-known member
I thought I was doing all right, but I can't seem to shake some fears.

I began twitching in late July, followed by two weeks of sheer hell...convinced I had something sinister. I was diagnosed with BFS in August after having EMG results come back clean. Immediately after, I was fine (psychologically), and my typical BFS symptoms, although present, weren't really bothering me.

However, for the past couple of weeks, I can't stop thinking about other possible symptoms that might lead to bulbar ALS. I know that, deep down, I'm being paranoid, but that hasn't helped.

I am always worried about my speech and swallowing. I probably stutter something 1-2x per day, and I might swallow something "wrong" 1x per day. When eating, I wonder if I'm having trouble getting the food down my throat w/o too much trouble.

I know that the sensible advice is simply "STOP WORRYING!", and most of the time I can tell myself to do just that. I guess I have some final hurdle in my brain that I have to get over, but I just can't seem to clear it.
 
GO back to the neuro, talk to him/her about your fears, ask to have your bulbar muscles tested, then stop worrying. If you had had bulbar onset ALS since July, you would be in bad shape by now. That is the most rapidly fatal form. What you are describing is CLASSIC anxiety symptoms, with more than a touch of somatization. I bet most people that suffer from BFS have been there in the same fear, I know I have.

Hope you can get on with your life soon....

Jen ;)
 

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