Calf Twitching, 5 Months On

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ChrisUK88

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Hi allAs you all know i have had calf twitching for 5 months and a clean emg after 3 months but with a slow nerve test on my problem leg. The last 3 days have been hell, i have always had soreness in my calf since my twitching began but now when i walk my leg seizes up on me and its goes in cramp all the time as i am walking. I feel like i have to stop and stretch out my leg to make it go away. It also aches all the time i walk.I am so so scared today that i do have ALS that its now ruining my life, i cant think of anything else, everytime i walk i get so scared that it will happen, for the past 2 months i have literally thought about every step i have took. I am scared to walk anywhere and i dont know what to do. My next Neuro appointment is not until June and he has basically told me that i just have to get on with it. I hear so many stories about people getting clean EMG's but then getting a dirty one later on.i have so many things running round my head right now, i have never been this low and scared. my leg feels stiff, is this spactity? why do i always go in cramp all the time? when i was walking tonight and i felt the tightness and cramping, when i wiggles my toes while walking and i could feel it pulling up my calf.I am really really sorry to put a post like this but i am on the verge of a break down because of this, its all i think about 24/7. Its my gorgeous wifes birthday today and i am sat crying in her arms...i am a wreck.She seems to think that some of this could be down do anxiety and that i should talk to someone but the pain is real i feel sick with worry..Not really sure what this post is asking but had to put my feelings down.Thanks for readingChris
 
Hi Chris,I haven't been on this site for a while. I find your story very simular too mineI experience the same cramping in legs like you do. The first 6 monhts into this I had that a lot. Sometimes I good barely walk. This is totally BFS ! Don't get yourself upset. I'm twitching 24/7 in my calves for 16 months now and I'm still walking :)"hear so many stories about people getting clean EMG's but then getting a dirty one later on.": those stories are mostly related to bulbar als & don't believe everything you read. The only thing you can do is try not to focuss on it, your thoughts feed it. Go celebrate your gorgeous wife's birthday, you are losing time here !(sorry for the bad english , I'm Dutch)Bart
 
Hey Chris,Where did all this come from? The last time we spoke you were really up beat.Chris i get a lot of cramp in my left leg, infact just 5 mins ago i got a really strange jolt like i've never had before. This is how this condition works,you start to feel a little better and then bang you're right back down again, you can't let every little new sensation drag you down. You were told you didn't have anything serious wrong with you and you don't!I'm sure the sensation you are experiencing is due to prolonged stress, the more you concentrate on your leg, the worse it will feel.Chin up budNige
 
Chris,It sounds like your symptoms are causing real suffering above just the worry. If not, ignore my advice. I so, I would seek out some medication to try that will help your cramps. I take Klonopin but there are other muscle relaxers a doctor might suggest. It is hard not to worry when the symptoms themselves are so bad. Of course you need to weight the pros and cons of any meds but you should get the info to make an informed decision. If the meds work, then you are in a better position to know if they are worth any risk of longer term use.Jro
 
Hi Chris,So . . . we meet again :D) Oh boy. I'm so sorry to read that you are in a state of panic again, but of course I can relate 100%. I did see your other PM, and you asked about my leg getting better. Just one day the twitching subsided in that part of my leg, and the soreness and cramping went away. I don't even limp anymore! Driving? Now it's no problem again. I'm not quite sure what exactly happened, the twitching became less, so of course I stopped focusing on that leg, (come to think of it I haven't even done a measurement comparison in over a month! LOL) and it started to feel better. I'm having other concerning issues now, but that's another story.With the fascis in your leg(s) so intense in that one spot for sooooooo long now, I'm quite sure that's causing the fatigue and cramping. That muscle is working 24/7 non-stop! Maybe you should call your GP or even your neuro and get some Botox injected that muscle / muscles and paralyze them for awhile. Sounds radical but I've read that it helps in some cases, and I'm sure my idea has nothing to do with watching a medical show last night about a guy who had cervical distonia and that's how they helped him! ;) I do feel quite comfortable in saying that with all that twitching and cramping and limping SURELY your EMG would have been dirty . . .try and take comfort in that and the many, many, MANY stories on this Forum of BFS'ers who have and are going through your same issues.Try and have a good day today,(((Suzann)))
 
Hey Chris,I know exactly what you are going through. I had the same experience before my neuro's appointment. I couldn't concentrate on anything, I was anxious and tired 24/7, and yes, I did cry sometimes too.The fact that you had an EMG at all (and it was okay) is very reassuring. To be honest: I've been to the neuro, but he didn't even do an EMG. He said that there was nothing suspicious about my twitching and that an EMG would just be just unnecessary pain. Even without the EMG I trust him, and actually I'm sure that my EMG would have been okay if he did one. Of course I'm still a little anxious, especially when it comes up to new symptoms, and therefore I understand what you are thinking. But look, so many of us have the strangest symptoms, and in all cases the neuros have ruled out **S. There are even folks who experienced weakness, but it was only temporary and now they're fine again. BFS is a very strange thing influenced by a lot of factors, but what we know for sure is that it's not dangerous.Very many medical websites say that cramping can be caused by a lack of magnesium or potassium in the blood. If you don't get better or if the cramping returns, let your GP make a blood test. This was the first thing my GP did, but well, my values were OK. However, I know a couple of people who regularily take magnesium supplements and really get cramps in the calves if they stop taking them. But please do not just start taking the pills - if you take too much (or actually don't have any lack), it might make things much worse. Also ask the doctor about salves that might help, there are a lot of them.And... cheer up a little and try to do something pleasant.
 

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