Calf Cramps and BFS Relief
- Thread starter TrisTrip
- Start date
The burning sensations are typical in bfs and point away from mnd. As well, the sudden onset is a good indicator. MS doesn'tt usually present with twitching. Do you have butterfly mask on your face? Lupus is unlikely.
This will probably end with a bfs dx. I'd bet money on that.
This will probably end with a bfs dx. I'd bet money on that.
michaelhoover
New member
you guys are really amazing. Today was a really tough day for me. With pain, twitching, and much much anxiety. I am so scared and anxious, I get light headed and nauscious. Thanks again for taking the time to reply. oh, and no butterfly rash on my face. The legs are killing me, peticularly the right one. 
while trying to get pregnant at the same time...
while trying to get pregnant at the same time...osauruszDinosaurrex
Member
Hi!
Welcome to our nice family..
If you don't mind me asking, are you under any medication to help you getting pregnant?
Some hormonal-based meds can cause havoc in you CNS.
Welcome to our nice family..
If you don't mind me asking, are you under any medication to help you getting pregnant?
Some hormonal-based meds can cause havoc in you CNS.
eyennyGlimmer
Well-known member
Hi there and welcome. I wanted to respond to your burning sensation. I do not know if you mean burning sensation on the skin or muscle but anyway I had both..lol.
When BFS started my arms would burn bad in the muscle, really bad. I would hold them and just squeeze, then they would get heavy. I have also had and still do get a burning sensation on my face, feels like a sunburn..
Hope this helps..Jenn
When BFS started my arms would burn bad in the muscle, really bad. I would hold them and just squeeze, then they would get heavy. I have also had and still do get a burning sensation on my face, feels like a sunburn..
Hope this helps..Jenn
niakyScotty
Member
I have had the same symptoms of you...you might search my original posts and many others regarding my symptoms.
Pain is usually NOT an indicator of serious disease (yes there are some, but not the ones we dread here). Especially the sensory stuff you are experiencing.
There are times, as I was told by a board member who went to Mayo for diagnosis, where our nervous systems are overloaded by trauma. You certainly after our pregnancies, qualify for at least a beginning to all of this.
With that said, the Hashimotos is what interests me. Who read your results? Have you had your TSH and free T3 and T4 checked by an endo? Cause I can tell you that a GP and an endo will read them differently. Lab norms do not correspond to what the National (or American...I forget the monniker) Association of Endocrinologists consider normal. Labs usually see a normal TSH range between .5 and 5.5. Any endo worth their salt knows that 5.5 is not normal and is more like 3.0, and some think maybe even 2.0.
If your body isn't produccing thyroid hormone, and it won't ssince you have antibodies against it, you will experience the symptoms you complain of. It is a matter of time given your antibodies that your thyroid isn't working. And maybe for you that time is NOW, no matter what the lab says as normal.
I'd look there harder, if you haven't already. Some might even proesribe synthroid as a test to see if your symptoms clear up....
You are going to be stressed enough though, getting pregnant, so don't worry about dying...cause you're not....
Pain is usually NOT an indicator of serious disease (yes there are some, but not the ones we dread here). Especially the sensory stuff you are experiencing.
There are times, as I was told by a board member who went to Mayo for diagnosis, where our nervous systems are overloaded by trauma. You certainly after our pregnancies, qualify for at least a beginning to all of this.
With that said, the Hashimotos is what interests me. Who read your results? Have you had your TSH and free T3 and T4 checked by an endo? Cause I can tell you that a GP and an endo will read them differently. Lab norms do not correspond to what the National (or American...I forget the monniker) Association of Endocrinologists consider normal. Labs usually see a normal TSH range between .5 and 5.5. Any endo worth their salt knows that 5.5 is not normal and is more like 3.0, and some think maybe even 2.0.
If your body isn't produccing thyroid hormone, and it won't ssince you have antibodies against it, you will experience the symptoms you complain of. It is a matter of time given your antibodies that your thyroid isn't working. And maybe for you that time is NOW, no matter what the lab says as normal.
I'd look there harder, if you haven't already. Some might even proesribe synthroid as a test to see if your symptoms clear up....
You are going to be stressed enough though, getting pregnant, so don't worry about dying...cause you're not....
Hi, there.
I'm assuming you've been worked up for Hughes syndrome?
You would need to have had blood work, and not just one test, but a series of bloodwork, because it doesn't always show up consistently.
If you've seen a Rheumie, and since you were already dx'ed with Hashimoto's, I would presume you've been worked up, but just be sure you've been to a reputable physician from a major teaching hospital.
You don't want to mess with miscarriages, particularly since you are wanting to become pregnant. Hughes syndrome is easily treatable.
Blessings,
Sue
I'm assuming you've been worked up for Hughes syndrome?
You would need to have had blood work, and not just one test, but a series of bloodwork, because it doesn't always show up consistently.
If you've seen a Rheumie, and since you were already dx'ed with Hashimoto's, I would presume you've been worked up, but just be sure you've been to a reputable physician from a major teaching hospital.
You don't want to mess with miscarriages, particularly since you are wanting to become pregnant. Hughes syndrome is easily treatable.
Blessings,
Sue