Bulbar Symptom Fluctuations?

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Why on earth would they come and go? ALS is a progressive, debilitating, fatal disease. Bulbar is the fastest and most aggressive (not to mention rarest) form of said progressive disease. Bulbar symptoms coming and going would be like a birthmark on your arm coming and going. It aint gonna happen.If you've had "bulbar symptoms" off and on for 9 months, I have some pretty good news for you. You don't have bulbar symptoms.Sorry to smash the illusion of your self-diagnosed mystery disease, but you don't have it.
 
My only suggestion is to use the search function on this site. This particular road (indeed this particular conversation) has been traveled hundreds of times, over and over again, by people with the exact same symptoms as yours. It has never turned out to be anything. Ever. Not even once. And that's not just me saying that, it has been said, and re-said, and debunked, and torn apart many times by people a lot smarter and a lot more well researched than me.
 
Again, I have ALSO been told by people living with **S that whereas your symptoms may feel worse some days than others, once the weakness has occurred, there's no getting the strength back. Once your voice is slightly hoarse, it just continues to stay and get that way more and more. There is no real improvement from one day to the next.
 
To be completly honest with you the speech issues have come and gone and back again also breathing comes and goes . The swallowing just seems to be getting worse. I have had about 3 or 4 times that my swallowing seemed normal though. I know for sure 100 percent for whatever reason the food I eat sits at very bottom left of throat for way to long. I dont have horsness just have to clear my throat all the time because of excess mucus.I know its kinda gross but its there always. Yes I do think if I had a good week without those issues it would help alot to reasure me. My mind is never off of this though. I have even had dreams about it. Its funny I am scared silly that Im going to die and not be able to take care of the people that need me but at times I have actually considered doing myself in. I dont think I ever would but even the thought is disturbing.I was terrified of this disease once before just not this version of it. I worked through it and made some major changes in my life. I never thought I would be in this boat again scared if I am going to die a horrific death. I remember about 1 year after I got over this last time laughing about the fact that I really thought I was dying. Here I am again scared and confused of course i feel like this time its the real thing but I geuss thats par for the course. Thanks for all the advice and info it helps .
 
So you think ill be around for a while? That is good to here. I just found my old posts from my last scare it was actually really interesting and some things that I forgot about. For right now I kinda feel good about all this. Tommorow I might feel differently so I better enjoy right now. Mabey some day I will grasp that concept
 

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