Boundless Gratitude for Supportive Strangers

[StacyDance]

First of all, my gratitude is boundless. We are all strangers yet connected by this syndrome. Thank you all for making my life a little easier today and taking the time to write to me. Basso, I wish I could have been on that ride...I could almost smell the wild roses! You write so vividly and I have such admiration for your acceptance of this syndrome. I felt like I had it conquered. The last flare I had ended and I took up jogging and weight training just because I could. I pray for that again.

I went for a walk tonight and even though it hurt, I relished in the fact that I could walk and talk and breathe! Self pity is the worst! I try to find the beauty in each day, in my daughters' faces and my husband's embrace. I've been in love with him since I was 16 years old and I'm 35. I got sick with this before we were married and he wanted to marry me anyway, even though I tried to back out! He's been there for better and worse and that's what it's about. As far as making love under the moonlight, there's a storm brewing and my luck we'd be struck by lightning But we shall on the next warm evening! You inspire me to be better and to handle this better! Thank you for taking me on your journey!

Thank you all for sharing and of course caring enought to write to me in my hour of need! I will be seeing my neuro soon and hopefully she will send me home and set my mind at ease.

To say I feel the Love is an understatement!

Many Blessings!

Stacy

 

[SirTrouserz]

Hi Stacy,

I'm not a long term twitcher, but I thought it might help to repost something Kit said since she gave me the ok. I think it might hold the part of the clue to what happens to us and our anxiety level when the twitching flares up. She said:

"What I basically had said was that the peripheral nervous system is used for a lot but it does come under the control of the sympathetic nervous system control as well in a "fight or flight" response. So if you are about to be eaten by a bear, your legs etc will get increased blood flow etc so you can run away. At any rate, if the peripheral nerves are hyperexcitable then it would seem to me that it was feasible that the sympathetic nervous system might in fact be in hyperdrive during an exacerbation and the anxiety which you may have a little bit of normally would also be hightened. So generally the anxiety we feel is not us being "nuts" or hypochondriacs etc but may actually be a physical manifestation as well."

I really found this helpful and thought you might, too, since you're going through a rough patch. I hope you're feeling better soon!

Sir_Trouserz