Bilateral Face Numbness and Paresthesia

[kschoenhaut]

I've been obsessing for the past months on this and other related studies :It links bilateral face numbness and paresthesia to collagen diseases especially scleroderma, this is the main debilitating issue that i've been battling for almost one year with no signs of it ever slowing down. The issues described there fit my picture to a t, including the mouth tingling back of throat, tongue and inside of cheeks, i even have tingling inside my face and ear canal and that litle muscle that twitches inside the ear, yeah, it tingles.The disease's incidence is about 20 new cases per year per million, so each year there will be 140000 new cases, from those only 1/4 will be men like me so 35000, from those only 5% have trigeminal neuropathy so 1750, from those only 5% will develop trigeminal neuropathy before other signs of the disease so 87 people.This year there will be 87 male individuals with trigeminal neuropathy without other signs of scleroderma that will develop it worldwide, i'm sure 90% don't have access to the internet, so roughly only 8 people remain.From those 8 i think only one reads studies on the internet regarding the symptoms, so if i have this i will be the only one on the planet that is in this particular situation.There are 151 cases reported in the english literature of collagen diseases presenting as facial numbness.The symptoms are the same, chronic and relentless plus i have positive ana and gastrice cells antibody like one of the patients in the study.The question is, do these statistics show me that i have no chance for a good doctor to figure out my issue or that the study doesn't apply to me.The face stuff started 4 months after the standard full body twitches.

 

[abbitBouncyBunny]

Sombody really needs to take your computer from you, you come up with some rare and crazy stuff.... I feel sorry for you, I hope one day you will stop googling and try to move along with your life....

 

[kschoenhaut]

yup, i guess i'm bordering on the nuts, i realize that when i take a step back.

 

[christinasgirl123]

I can absolutely understand that the sensory stuff drives you nuts. It actually bothers me more than the twitches. I often have numbness and paresthesia on my face (and elsewhere). As I just wrote, today i was so tortured by sensory mouth issues that it even made me throw up....

 

[JohnHill999]

for a while, I convinced myself I had one of those collagen diseases that eventually results in aortic rupture (and i still do sometimes), since I meet a bunch of the diagnosis criteria.Have you tried jogging, kschoenhaut ? Just wondering, because before I picked up strenuous activities, I felt like I was slowly dying. It was difficult to pick up the pace because i was deconditioned and worrying about my heart imploding or my aorta bursting. But eventually, when i got to the point where i seemed to be more and more alive each time, almost like a quest, the anxiety dissipated (when the anxiety went, nearly all the other symptoms I had other than twitching went with it also). My heart stopped pulsating strangely, I stopped having irregular heartbeats and some neck arteries seemed to stop having an artery-spasm-blockage feeling. My ear ringing seemed to decrease to a very tolerable level.Now, though, I'm too much alive and can't sleep due to acquiring real-life emotions that I haven't felt in ages (drive, resentment, regret, loneliness being a few)So, going on quests of various kinds (exercise and MANY others) might be worth trying. This actually physically stopped many of my symptoms, and brought me back to the real world.