BFS: Worried About the Worst?

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PopeyGod

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Just wondering if BFS has kept anybody from working.....I have many of the symptoms for BFS but also Fibro...I went to the Fibromyalgia site and its thread after thread of people talking about disablity and being bed ridden and not working anymore... It has my anxiety going through the roof...It just like the MS board over there...I am not close to being that bad at all but I just don't know what is happening to me...I really wonder how I would be feeling if I never had access to the internet...When I started goggle stuff is when this got out of control.
 
I am the president of a large construction company, this syndrome has brought me to my knee's, and has cut my productivity at work at least in half. When I diagnosed myself with ALS I could literally do nothing. If it where not for my Vice president, who I brought in the loop, I and our company would have been in deep trouble. He gave me the space to come to terms with this thing, which I am still doing, and see numerous neurlogists who all gave me the clear signal. It also allowed me to slowly start to build back up my tolerance to the stress and pressure that comes with my position, and accept that this thing is not going away anytime soon. That is one thing that can get overlooked, the financial burden this must place on alot of people and there families. I did make up a BS reason to step away from work for awhile when mentally I was in the worst place I could be, I was only off for about a month, and it only made the symptoms worse, pacing the house all day and thinking about your impending doom is not healthy. Getting back into work is somewhat theraputic, although there are days I get up, and I know it is going to be a bad BFS day, and I just try to make it through the day, and accept not much is going to get done.
 
This has been a big issue for me and it's been hard to keep it under control so I sympathize with both of you. Some days - for a while - I had so much pain in the morning that I couldn't go to work until I could down lots of Aleve or Advil and I couldn't do that until I could keep food down which is hard to do when the pain is making you sick to your stomach. That has passed thanks goodness - the Rx got me past it but now it is really better and I've backed off the Rx. I have worked all my life and I can't imagine not working - it would be a 'giving up' for me so I struggle on. Meditation helped a little..changing my diet helped..but this syndrome just seems to run it's own course. It is awful for a while, then it gets better, etc., regardless of what else is going on. I am lucky in that my hours are flexible but to tell the truth I feel guilty about not being able to give 100%. I still am very productive but on bad days it is so hard - not just the physical bcfs crap but keeping it mentally together to deal with challenging situations - something I never could imagine before.nk
 
Hello everone:I am a 37yr old male that has had this ridiculous illness since Aug. 04’. Like many of you, it started after a flu-like illness which happened to occur at a very stressful time in my life. My wife had just had our third daughter via emergency C-Section after experiencing a seizure. My daughter, delivered at 7.5 months spent the next two months in NICU. I remember thinking I wasn’t sure if I was sick or just stressed out but I decided to see a doctor after twitching so much I couldn’t sleep. Like many of you, after doctor visits and neuro. Visits I’m still twitching. I work as an Analyst and sitting a desk concentrating for 8 hours is practically torture. I’m not one of those people who complain a lot but after 4 years… I’ve had it. I keep hoping my condition will get better but it’s not. As a result, I’m finally going back to the doctor to see if I can get disability.Has anyone gone on disability because of this syndrome?
 
I have heard of a few bcfs'ers that have taken early retirement or have gone on some sort of disability. But also have heard from others who wanted to, but could not get, a doc to say they were disabled. You should do a new post to ask about disability and see what responses you get. I think we all experience this syndrome differently - plus our life situations, fitness, support systems, Rx compatibility, and character all come into play. Best wishes.
 
I am the president of an accounting firm. We have 4 locations and tax time is horrendous. When I nearly had a break down on New Years Day, the psychologist I was seeing told me I would not be able to make it through tax season with medical help. That's when he referred me to the psychaitrist that I see now. BEST move I ever made. I went 4 months wishing somehow I could unzip my body and step out to now I have mild twitches periodially during the day - most of the time I don't even notice.
 
One of the owner of the most popular radio station in Zagreb plus music editor and DJ and Editor-In-Chief. There is more like participation in different groups, promotions, Syndicate (Union) etc.
 
I am now a middle school English teacher in a low-income urban public school district. Before that I was a corporate litigation attorney for one of the largest law firms in the country. I have always had stressful jobs so I can't blame the twitching on job stress. In fact, I love my job so much my stress is that I have this to deal with health nonsense and can't enjoy it more.Krackersones
 
I am a computer programmer and part-time comedy writer. I spend a lot of time on the computer. Or, as my neurologist says, "I have a lot of time to google symptoms and freak myself out." He told me that all programmers do that. *shrug*
 

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