gemsManage
Active member
I have some of the symptoms of BFS and I have not been able to get a diagnosis for 5 months, so I am trying to figure out if this might be me. I have incredible tremors on the inside. There is not much out there about this kind of shakiness, but it seems to be a common thread with many of you. My tremors are ALL over ALL of the time. (Arms, hands, legs, trunk, face, chin, my teeth chatter.) You can't see this, I can just feel it. I can feel them most when I am sitting and trying to relax, when I lay down to go to sleep, and I feel the vibration in my back many mornings when I awaken. I have some twitching that is going on in addition to the tremors. And I have the aches and pains in my muscles that won't seem to go away. Not constant, just when I use my arms in a particular way. The pain is not unbearable, but it causes discomfort. I also have perceived weakness--feels very uncomfortable to raise my arms, like their weak (but they are not.) So I have a lot of the same things that I am reading about here.
Here is my question: My other symptoms don't really fit. I have sensitivity to light and sound. My sleeping patterns are extremely altered since this started. I had incredible insomnia this summer, but the meds have helped this somewhat. My body feels like it is in overdrive when I am not on the meds. My head has a "tinny" feel to it. I feel like I have a head cold, only I don't have the cold. Because I have all these other symptoms, does it sound more and more like BFS is not a possibility or do others of you have similar type stories to share?
I am not worried that this is ALS or MS or any of the other nasty stuff at this point. It's gone on too long and I have no clinical weakness. I have also had tests to rule those out. I also had a lumbar puncture and they tested for Lyme. It came back negative. Is that enough to rule out Lyme? I am feeling like crap most of the time and I would really like to get some relief from my symptoms. It seems that unless they know what it is, I am having a hard time getting some help. New neuro appointment next week, so maybe help is on the way.
Here is my question: My other symptoms don't really fit. I have sensitivity to light and sound. My sleeping patterns are extremely altered since this started. I had incredible insomnia this summer, but the meds have helped this somewhat. My body feels like it is in overdrive when I am not on the meds. My head has a "tinny" feel to it. I feel like I have a head cold, only I don't have the cold. Because I have all these other symptoms, does it sound more and more like BFS is not a possibility or do others of you have similar type stories to share?
I am not worried that this is ALS or MS or any of the other nasty stuff at this point. It's gone on too long and I have no clinical weakness. I have also had tests to rule those out. I also had a lumbar puncture and they tested for Lyme. It came back negative. Is that enough to rule out Lyme? I am feeling like crap most of the time and I would really like to get some relief from my symptoms. It seems that unless they know what it is, I am having a hard time getting some help. New neuro appointment next week, so maybe help is on the way.