BFS Not Uncommonly Experienced

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RockSolidGuy89

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I don't think BFS is that rareI think a lot of people twitch....but I think the majority of those who do twitch do not worry about and do not go googling about twitches and worrying about muscle-wasting diseasesI think a lot of people do not go to the doctor or consult medical information unless something is a) paining them greatlyorb) preventing them from carrying out some physical or mental taskas twitches are just generally annoying but don't really hinder us in any way I think a lot of twitchers don't report the twitchinghowever, some of us twitchers go googling or visit our neurologist and freak out when we read about various illnesses increasing our anxiety and exacerbating the symtomsbasically my theory is that there are a lot more twitchers out there than we think, but most pay little attention to their twitches which is one of the best remedies for not making the problem worse
 
I really agree with U. I have always been a twitchy person before BFS, but never cared. When my hand stiffness started I googled and somehow got to ALS......... :eek: and started twitching all over. I guess a litte twitching can be well tolerated,but that anxiety or stress send it all to overdrive and to a level you cannot ignore them anymore..
 
Well, not really. While ocassional fasciculation is pretty common for many people, widespread and frequent fasciculations are actually not that common. There were few studies made on this subject, mentioning that feet and calf fasciculations are pretty common while above the knee it should be investigated as its not usual in healthy people (with BFS I do not consider as being healthy).
 
Well, that is whyt I meant with "overdrive"....very strong frequent fasciculations are not really ignoreable. But actually my Fibromyalgia says doc he sees widespread fasciculations very very often in Fibromyalgia and CFS patients, and Fibromyalgia is definately not a rare disease.
 
Yes, that is very true. Twitching in the feet and calves is very, very common and nothing to worry about. My wife has this. In summer you can see it in many people on the street.When you start to worry about it, it can spread to the whole body, but I'm starting to think these two types of twitching are unrelated to each other. As in "benign (=normal) fasciculations" vs. "anxiety related fasciculations".
 
but how do we know how many people have widespread twitches, the eyelid twitch is extremely common and that's not in feet/calvesalso as I said, I think most people do not report or investigate their twitchesI first felt twitches about 15 years ago, I had no real worries/anxiety about them and then they occurred with less frequencyIt's like with countries or cities that report their crime figures, one city might say they reduced crime levels but we can never really be sure as a lot of people may not have reported a particular crimewhich comes first? the hyper-aware ultra-anxious twitching googling hypochondriac or the widespread random long-term body twitches???
 
Omg..christinasgirl123 pls tell Simone there is nothing to worry about..Simone, du hast verstanden nicht recht. Keine Angst..:D) lol yes its not twitchy DOG as I'm Docen :)PetrifiedGuy: Eyelid twitching is medicaly linked to stress. Every neuro textbook reads that calves, eyelids and feet and pretty common places for benign fasciculations. Some also says thigs, especially for younger males.
 
My Pre-BFS twitches were also widespread, whereas my shoulders and hands have gotten more of that than the rest of my body. I definately asked my doc where fascuiculations in Fibromyalgia and CFS and other somatisation issues occur and he said; E_V_E_R_Y_W_E_R_E.
 
My 15 year old daughter twitches frequently, especially in her biceps, thighs and back. She's not scared of them, but she'll mention it several times a week. She told me one morning that a twitch in her arm kept her up half the night. I just smile at her and tell her they're nothing to worry about. I hope she doesn't wind up like me! :( My husband gets them in his shoulders, arms, and legs fairly often. The ones in his arms are most common and he thinks nothing of them.Also, just like Chrissi said, every person I've spoken to personally with Fibromyalgia has widespread, frequent twitching.
 
I have never twitch before this or maybe never realized, also never heard that any on my friends or family had this either. Only thing I had was eye twitch. Twitching came out of nowhere and started in calves. It was intense from the beginning and Pain came the same day:( also I have never read any articles/info about AlS
 
I used to have bouts of eyelid twitch back in college. That was definitely stress, but was rare and only happened a few times.I don't remember twitching much between that decade and this one. I was the same as WindyCityGentleman, pain and twitching really started up at the same time. The last few weeks I had less pain, but the twitching in calves and shoulders seems to want to stick around!The Internet definitely makes things tougher for me. I tend to want to find answers to pain problems, which inevitably leads me to start searching, and then I find all of the worst case outcomes.
 
I think twitching is more common than we think however I think the difference between just have some random twitching and full blown BFS has a lot to do with anxiety and how that person handles it. When I first started going through this and was explaining to friends of mine my concern most of them said ohh yeah I get twitching like that too and just brushed it off like no big deal. If you ask most people on this board they would say that their twitching took off after they searched Google and started to freak out that they had some sinister disease. I think the paranoia sends our nervous system into some type of hyper- excitable state and the twitching progresses.If I think back I can remember 6 or 7 years ago getting random twitching in my left bicep at night several times a year. I never even thought twice about there being something wrong and actually remember thinking ti was pretty cool. Fast forward 6 years and now that I've developed sever health anxiety, when very similar twitching happen again this time I ran to Google, freaked myself out and my twitching exploded. Now that I've worked on my anxiety and realize that I don't have ALS or anything sinister my twitches have slowed down tremendously from 6 months ago. So in my opinion I think twitching is very common but how you handle the initial reaction and your overall health anxiety have a big impact on the severity of the twitching.Mike
 
RE: what TwitchyMD said - any studies that say twitching above the knee is not usual, would be discounted if most people who twitch (regardless of where on their bodies) on a regular basis, stay home and don't go to the doctor.I fully agree with this post. I used to twitch all the time on my eyelid - even as a child - and my mom said it was because I was tired and it never bothered me. So many people (my husband, my sister) have twitched. Not like me of course, where it's almost every day 24/7. But, if I weren't such a hypochondriac, there's a good chance, that the twitching would not have sent me to the doctor. It doesn't bother me and most of the time it's hardly noticeable. It's definitely there, but it's not something that would normally warrant a doctors visit. It was the fact that I googled it, that sent me to the doctor with a lot of fear associated to it. And, from that point on, I over-analyze every single twitch as well as every possible thing going on in my body.Think about it, if we lived in the 1950s with no access to the Internet, or really medical journals/books, and we twitched like this, think any of us would be running to the doctor? It's very doubtful.Now, if there's pain or immobility involved, that's a different story. But, with just twitching, I really doubt many people would head to their doctor for just some silly twitches.Mitra
 
Mine didn't go all over my body until I researched online, and within hours they were nearly everywhere. I didn't have tongue twitches until I read about them on here. Then when I saw they would be accompanied by trouble swallowing all that started. Once I figured out logically I didn't have bulbar onset it all disappeared. I know that's not been the case for everyone here, but for me it seems symptom severity and sometimes even symptoms themselves are dependent on how much I've read about a disease.
 
If our mind cause the whole body twitching than Chrisis doctor's idea that wrong breathing cause it is incorrect for majority of us:( . Or it is true? but only for these first twitches before googling ....any suggestions ?
 
Let me clarify. I believe I had legitimate twitching in my calf and foot to begin with. I believe it is from either fibromyalgia, BFS, or some problems from my lower back. It was when I Googled that the twitches became widespread and frequent. As my anxiety dies down, so do the twitches. I can drink caffeine or be sick and neither of those seem to impact the twitches. Only exercise and anxiety seem to have any association with mine. The increase with exercise is only temporary, as it disappears a few hours after I stop. My mindset and my level of anxiety seem to be the determining factors in my case. Whether it's from adrenaline, not breathing correctly, I don't know.
 
Actually anxiety and stress or a disease have the biggest influence on our breathing pattern. So with someone with an minor breathing prob some anxiety can make this really severe. But even if you breathe correctly, anxiety can cause a tensing up of muscles that is not even feelable for us . Pre-tensed muscles are very likely to twitch. I guess not everybody on this board has wrong breathing as the only cause, I rather say that BFS is a bucket for all kinds of weird things that cause twitching, but for people that have anxiety this is a very likely cause
 

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