TwitchyGambler
Well-known member
I am from the class of April 2010 where my symptoms started out as stiffness and cramping in mid April only to turn into violent widespread twitching. I UNLIKE many of you thought it was BFS just like my dad who had been diagnosed in 1994. I was all to familiar with BFS and recall vividly the mental torment it played on my father. I had mild twitching before and when my dad made several trips to a neuro for twitching. I thought he was silly. Fast forward 16 years later and there I was making the trips to the neuro and he was telling me I was silly. I clearly understand violent nonstop wild twitching is not normal. I think I have had every symptom of BFS: numbness, stingers, limbs falling asleep, insomnia, every part of me has twitched including the tongue. I lost 3 months of my life last year truly committed to the idea that I would be dead in 5 years. To say I was a total wreck doesn't even begin to describe my emotional state. I had a hotspot from late January 2011 to mid April of the left foot. I just knew this was going to turn into ALS because it was one spot twitching and it was almost continuous and just when I thought it would never go away and it was a presentation of *** it went away almost as mysterious as it came. I have come to terms with this. It will really never go away or not completely but I can live with it. I stopped my meds and am only taking magnesium for my twitching. After all my self test this is what works for me. I may not have it as bad as some of you, but I still come here for support and to lend support to those who are being mentally raped by this syndrome. My BFS has slowed down once again but I expect and will be ready for a flare up when it comes. Hope you all are doing well and for our newcomers who are reading this you will be ok. 6 neuro trips 2 EMGS 2 CT's and a MRI - I am OK. You will be too.
Robynn 
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