BFS Diagnosis After Novenas!

[ListlessOne]

OKay, set me straight. After countless novenas, I got thru the NCV/EMG two hours ago and dr said its BFS!!!!! Also testing me for the antibody. The dr also said my back/neck/trap burning and spasms and funky head pressures/earaches etc were from myofascial pain syndrome. So I have to do a little delving into that. Little sister of Fibromyalgia. Thats what I believe kicked off the BFS. The pain is intense in that area. Anyway, you know what Im going to ask..... I sort of still have some unexplained throat/tongue issues. He did not poke my tongue. I had NCV/EMG in two legs and one arm. He did my cheek as well. No tongue. Could bulbar still be in play? My understanding is that b/c I have been twitching in my limbs, the test would have picked up the bulbar ALS. Please make my evening, is that true- twitching and clean EMG 3 limbs = no bulbar as well?This experience taught me so much about what is important in life. Months of living hell, as you all know from your own experience. I can't wait to snuggle my kids tonight and sleep not giving a hoot about the cramps and twitches. God is good. No, God is GREAT. On the feast of our Lady of Lourdes too. JUst a good Catholic girl with BFS! Pyrs (Linda)

 

[ChristinainWonderl]

Linda,You are right. God is good...all the time! I was thinking about you today and wondering how your test went. I am so happy for you. ( I am the one who replied to your post yesterday ). I would take the test results and roll with it. Trust in your doctor and the results you received. Congrats,ristinaL91

 

[MarioMasher]

Bulbar is not in play, and it will never be in play. Don't waste even a single second of your life worrying that what you have is bulbar. It isn't.For reference, see my BFS FAQ answers below. I wrote that four years ago. I know what a cliche it is that everyone at some point panics and thinks they will be the first ever BFS bulbar case. It is so much of a BFS cliche that I had to write that FAQ about it, and I always knew what I had to list as #1.

 

[Gracer]

no chance for bulbar but a lot of chances for anxiety related throat issues and issues related to fibromyalgia.

 

[ListlessOne]

Thank you all! I have read all of your posts intently and was grateful for your responses. I feel like today is the first day of the rest of my life. So much I have putting off/ignoring, etc b/c this all!