BFS and Pain: Connected?

[DJH621]

How common is cramp like pain in BFS? I've had BFS symptoms for years & pain for years. I haven't really connected the pain (had 2 severe auto accidents & felt it was probably related to those---and have been diagnosed by one physician with fibromyalgia; a disorder I'm not so sure I believe exists.) With this reoccurance of BFS I've "paid attention" to the type of pain I'm having, and, in addition to my "regular" pain, I have a lot of "cramp like" pain w/o the muscle hardening, although this afternoon I drove 6 hours straight from our cabin and when I sat down to work at computer my left calve had cramp pain where the muscle did contract. Is this cramp like pain common with BFS? I thought I've read posts that it is, but I can only locate a few posts regarding cramping pain. Would appreciate some additional info on this as a symptom of BFS, (I'll get this cramp like pain in various parts of my body and it doesn't stay for long--it usually moves around, also get an occasional REAL cramp.) As always, thanks for your information and kind support. Denise

 

[ashleyryan]

Yeah this is normal with BFS, I have this too and my muscles aren't hardening either. Don't worry My main area for this pain is my forearms by the way

 

[ValgerAce59]

Hi, I was actually going to start a new thread on this today, I've been concerned also about some cramping I've been getting. It seems like it's mainly in my calves, sometimes in other places around my legs, but mostly the calves. The reason this bothers me is that I've been twitching for quite some time now, about 11 months, and isn't it a little wierd to just have the cramping coming up now? I was a little nervous about it, cause I remember reading somewhere that pain is not common with als, except late in the disease. Well, maybe for me this is a bad sign, because I've already been twitching for so long, and am just getting the pain and cramping. I have read on here about how cramping can accompany BFS, but I wasn't able to find those posts. Sometimes it's really hard mentally to get over this. I woke up today just generally not feeling well either mentally or physically, and it's hard not to imagine that things are getting worse. As I type this, I have a crampy feeling in my thigh. I am so grateful for this forum, because just about 100% of the time I can come on here and feel better. I really try hard not to google anything, or go anwyere else. I think you should feel reassured that a physician has told you that you have Fibromyalgia, and that you've had these symptoms for years. Also, what do you mean by hardening of the muscle? Now I feel like I might have that too. I'm sorry I wasn't much help at all to your particular post, only to say that I get that also, but I sort of have questions about it also. Maybe someone might know~~I do think that cramping might be part of all of this, though. My question was, is it somewhat normal for it to appear this many months later? Thanks again all, Val

 

[DJH621]

I find it odd also that my cramp like pain started so long after my initial symptoms did, (although I know it's definitely part of BFS). Maybe this will help some of you.....my 1st time with BFS my main symptoms were pins & needles, twitching & some slight dizziness, (think I had some slight jaw pain & numbness also.) After a couple of years I went into remission. During my 2nd or 3rd relapse in addition to twitching, etc. I started with the "internal shaking" vertigo and other symptoms. 3rd relapse came other symptoms, i.e. jaw pain, preceived weakness when swallowing, etc. These symptoms have all gone away for very long periods of time over 30 plus years. My "new symptom" with this relapse is "sleep starts". I guess what I'm trying to say is that, in my experience, new symptoms of BFS can pop up ANYTIME during your 1st encounter with BFS , after a long remission or anytime during a relapse. I even usually have some symptoms when I'm in what I call a "remission". If it's not obvious weakness I think it's just part of this crazy syndrome. With time, you get used to new symptoms and worry less AND of course, with time you know you're really okay. I have gone to "follow-up" appointments with neuros b/c of new symptoms that seem unusually concerning to me, but it's always something benign. This board has educated me regarding the wide variety of BFS symptoms, (some things I didn't attribute to BFS before---it's all making so much more sense.) It's nice for people also to share how they cope with certain symptoms. The possible "autoimmune" theory also interests me as there's a lot of autoimmune diseases in my "rather small family". Best wishes, Denise