eyennyGlimmer
Well-known member
ahhh I posted this also not to long back..I think you can find it under questions on communityn..We do have PNH pretty much..that is why I do not think BFS is just some strange thing..I believe it is are peripheral nerves that got infected, just like someone with diabetes, instead of neuropahty we have BFS..Mark please do not worry, are muscles are hyper and our nerves, but it is benign, it is a pain in butt that is all..this is the one question i wished I asked to the Dr..I will because the other Dr. will be calling me to go over my EMG on phone..I will ask him this question..writing it down now so wont forget..I expect a phone call on thursday because he does his calls on those days..This is nothing PHN just means are muscles and nerves are excited..really no biggy and do notttt read about this on internet..jenn