Bells Palsy: My Story

Highlights Only
S

SashaSamantha

New member
Hi :) My name is Ana. I am 27 years old. My story started this way. On 12.November 2011 in the morning when I wake up I notice that I can not move my right side of my face. I found out that I had Bells Palcy.(The previous day I had fasciculaton on that side of my mouth). My Bells Palcy at that time was due to a tender lymph node in the sub mandibular area. I was scared and the same day I went to the neurologist and they give me 60mg of prednisolon and to reduce the dose in the following month and acyclovir. My Bells Palcy lasted for around 40 days. I had also made an MRI of my brain and everything came back clear. I had stressful time due to may condition but while I was still home and recovering from that condition I felt one day I had fasciculation on my back on the right side. The same day also I had fasciculation on the left leg and on my middle finger on my left hand ( Because my Bells Palcy started with fasciculation on that side of the face day before I googled :confused: ) . And I made the bigest mistake at that time I went to dr google about the twitches and freaked out that I had MS. And from December 2012 I am in the biggest hell of my life. I made EMG (normal) VEP(normal) SSEP(normal) every possible blood test (normal) Lime test (negativ) immunological blood tests (normal) MRI of my spine (normal). I went to every neurologist that I know and they sad don't worry you are fine. I don't think you have MS or ALS go home and take some sedatives.But my anxiety is still somewhere in the sky. Now my symptoms are:1. Fasciculations all over my body (Legs, hands, beck,face, eyelid, neck, eardrum, everywhere) not 24/7 but pops everywhere 2. From time to time I feel like my right hand is numb.3. Burning sensation around my left ear4. Dizziness not all the time but most of the time (my biggest scary symptom in the moment)5.Tremors in hand from time to time 6. Cramps in my feet after long walking or wearing high hills.This is ruining my life! I can not get beck to my old life. During this 9monts of my hell I had as much stress as possible one person to have (not only from my condition but also from work,my boyfriend father died very soon after we found out he has lung cancer,my friend was diagnosed with MS after an optic neuritis).I can not get the MS story out of my mind.I still can not live a normal life. :( :crying:
 
Don't worry Ana , if your all reports are clean there is nothing , I have most of this and I also has from last December , so far I am doing good, had been two nero , they can't find any thing , I glad you had MRI, I have do .Take care, stop worry :)
 
Well, looks like your fascics everywhere else were not accompanied with palsy in the affected area, and your Bells palsy never had returned, so that particularly case was really resolved.All the rest of your symptomes for now are absolutely withing BFS or even normal person picture (it is very normal to have cramps in the calves after wearing high hills or after long walks).please remember that you do not had optical neuritis, your VEP are fine - this excludes optical onset of MS. Your SSEP are fine - so no other onset of MS seems to be possible. Your EMG is normal. So there is no real reasons to think you are dying right now.You just had too much stress to withstand without any help and your body celarly talks to you about this. Try to look from that prospective - listen to body language, notto the symptomes itself.Manage that body message with more regular life, take a firm day schedule for a month at least, talk to psychologist if necessary - and see what would be the result.
 
I don't have too many posts, but I've been lurking on this board for a year now, and can say that you sound like a classic case of BFS.I find it funny how you can sit back and say "that's classic BFS with you", but when you're talking about yourself, you're unsure :sick:
 
Fascics are not even a symptom of MS. Dr. Google should be sued for malpractice on that one. :rolleyes: Have you had any follow up MRI's? A clean MRI is certainly a highly positive indication that there is no MS. There are rare instances of MS not showing up on early MRI's, but subsequent scans are always conclusive. What was the timing of your first MRI in relation to your presentation? Not the fascics, but the palsy? Again, fascics are NOT a symptom of MS. And Bell's isn't necessarily, either, because it can have many etiologies; or more often, it is just a single, idiopathic (random, without cause) event. In rare cases, it can be a symptom of MS. How did a "tender lymph node" in your submandibular area cause Bell's Palsy? Was your doctor thinking it might be a dormant virus that triggered an immune response? Varicella, for example, could explain ALL of your symptoms rather nicely, and would be far more likely than any neurological condition. Definitely NOT **S, and exceedingly rare for MS. BFS is also a natural sequelae for a post-viral syndrome. Blessings, Sue
 
The MRI was made few days after my Bells Palsy and at that time I didn't even think I had MS or something like that.Yes I had Flair MRI indicative for MS lesions but everything was normal. No MS lesions . My MS scare started when I had the first google search about fasciculations. I had very nasty flu 1 month before I get the tender lymph node.Probably the tender lymph node was due to immune response to the previous flu that I had.Even my Facial nerve got total recovery only after 40 days. No one can notice that I Had Bells palsy. All the neuro doctors that I visit are not concerned about MS at all. But I am still not so sure. :crying: I am the most of all scared because I get dizziness. I am not losing the balance but I feel dizzy. I hate it !!!I hope this is only BFS as a sequelae for a post-viral syndrome.
 
actually dizziness might be also of two origins - a) circulatory b) again our sweet friend anxiety.I had one attributed to circulatory imbalance in my neck - mamma mia, there were bouts for several days in a row, started out of the blue (once I remember I was laying in the bed, reading, and suddenly I felt like the room is moving around me...). It was even hard to type because every second I had to move my eyes from the keyboard to the display, I had severe nauseous feeling...
 
One place to look would be a tick type disease like Lyme Disease. There are also others. Remember a blood test for Lyme only detects antibodies that you make against it. Not the disease itself. Hence false negatives. Bell's Palsy is associated with these diseases, well as fasics and some of your other sypmtoms. Worth a look with a DR that knows what to look for. Good Luck and it sure does not sound like ***
 
I am not scared from *** I am scared from MS. It is hard to find good lyme specialist around the country I live so I was wondering where to go. I hope I will find some solution for my condition. I hate my self because this is not me at all.
 
Andu,sorry for some late reply - I was on vacations...so, I had frequent bouts for about a year after changing my job from more or less riding to a kind of home office one... and have usually one-two flareups each year. Usually dizziness lasts for a whole day, sometimes for 2-3 days, gradually diappearing. Doctors say that neck part of spinal artery could be easilu compressed in the spine channels, that causes nausea, dizziness, etc.for me it was also swallen hand and leg on the side opposite to compressed artery, pains and parestesias, probably caised by certain brain ishemia.
 

Users who are viewing this thread

Total: 1 (members: 0, guests: 1)
Back
Top