Be Glad Your Twitches Migrate

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totaltwirls

Well-known member
Your symptoms are very similar to alot of us on this board. My twitches, as well as others here tend to roam around our bodies. We may have a day where they are in our calves, followed by some calm, and then a twitch in the arm, then in the lip, shoulder, above the knee (you get the picture). My neuro also told me "to be glad they migrate" because fascics with ALS seem to stick with one muscle group for a long period of time, but that musclse group has usually shown signs of clinical weakness as well. Then the fascic will move on to the next group, etc. Alot of us also have tremor, which many have been diagnosed with what is called essential tremor. From what I have read the tremor in a limb of an ALS patient generally begins after the limb has become clinically weak. When I went to my neuro at the height of all my symptoms (which also included some periods of numbness and buzzing), she checked for weakness by having me push and pull, walk on heels and toes, move tongue around, examined the muscles in my arms, calves, feet, etc. It is also my opinion that sometimes the tremor is an extension of our anxiety about this. I have had symptoms since Mid April and had an EMG and other tests in June/July and all were normal, but I still find myself reading and looking up stuff. We have to try and get over this anxiety, but it will take time. Know that we are here for support. :)
 
Your symptoms are very similar to alot of us on this board. My twitches, as well as others here tend to roam around our bodies. We may have a day where they are in our calves, followed by some calm, and then a twitch in the arm, then in the lip, shoulder, above the knee (you get the picture). My neuro also told me "to be glad they migrate" because fascics with ALS seem to stick with one muscle group for a long period of time, but that musclse group has usually shown signs of clinical weakness as well. Then the fascic will move on to the next group, etc. Alot of us also have tremor, which many have been diagnosed with what is called essential tremor. From what I have read the tremor in a limb of an ALS patient generally begins after the limb has become clinically weak. When I went to my neuro at the height of all my symptoms (which also included some periods of numbness and buzzing), she checked for weakness by having me push and pull, walk on heels and toes, move tongue around, examined the muscles in my arms, calves, feet, etc. It is also my opinion that sometimes the tremor is an extension of our anxiety about this. I have had symptoms since Mid April and had an EMG and other tests in June/July and all were normal, but I still find myself reading and looking up stuff. We have to try and get over this anxiety, but it will take time. Know that we are here for support. :)
 
I do not think migrating twitches or constant twitches are can rule out the dreaded disease.

What does migrating mean -- if you twitch in arm then leg then face then torso then after some time in arm then torso then leg etc.. etc.. then one does have twitching in the same limb or more specifically same muscle.

By a similar token, does anyone know that no *** patient ever has a hotspot ?? If so then it is better than any test. And if not, then *** twitches also migrate !!!

So, only a Neuro. exam. with or without EMG can be decisive....
 
My neuro indicated that if the twitches are random throughout your body and are not specifically staying in one muscle group for a period of time and then moving to another muscle group (again with each move, there would be wasting and atrophy accompanying it), then you should rest assured that it is not ***; however, as many of us have mentioned, to have own piece of mind have an EMG.
 
Why is A L S edited?

its not a bad word... it must be annoying to some people to hear it over and over in a benign condition.. if the internet was never around i would have never considered what i was going through was a l s .
 
Thank you for your replies !

I had an EMG after 2 months of twitching. But no special strength tests (except jumping on one leg, reflexes, ...)
Well, the neuro sent me to hospital immediately and that day before I came to hospital I read that ALS fasciculations are "migrating" - like mine. This scared the **** out of me, of course.
When I got the diagnosis "BFS" the doctor noted that I seem to be "nervous". LOL


Alex
 
I have read that people who have "essential tremor", a benign tremor, are more likely to get BFS. I have both.

From Wikipedia:

The precise cause of BFS is unknown, though very frequently anxiety is a major contributing factor. Another factor that seems to be common in many cases is a history of regular strenuous exercise. Attention deficit disorder or a related disorder may be a contributing factor, and people with essential tremor appear to have a greater than normal likelihood of developing BFS. In addition, there are likely other genetic and environmental factors that make the patient more susceptible to BFS.
 

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