Battling Anxiety and Health Issues

Highlights Only
Ok , that is why anxious People like me should run away from this board. 55 year , fascics since april , some cramps in The beginning ,A lot of cramps in legs now , dry mouth . Clean EMG at 5 month and clean clinical at 7 month.I dont feel safe att All , in fact i feel something horrible is going on .
 
For what its worth. I have been diagnosed with CFS but you haven't scared me a bit so don't worry. I'll listen to my own neuro instead.
 
Jason I liked your previous point , the restaurant analogy, about picking choice points from the menu. You are right cherry picking of science articles I.e.pseudoscience is stupid, you may as well say the story of Snow white and the Seven Dwarves is an academic study of cyanide concentrations in red vs green apples. Unfortunately the bias dissection of articles doesn't just come from the reader, but sometimex also from the authors. I don't include Eisen, but some articles brought here are not worth wasting worry time on. They have omittied important controls and are sensationalising over extrapolated statements so far removed from the raw data they are actually presenting. These studies started life with delusions ôf publication at the high impact journals, but due to their poor scientific content are finally published in some obscure journal who's review processes are less stringent.People bring such studies here, believing them as gospel, when in reality they are reading nothing more than the lowest tabloid equivalent of the science world. ( again I don't mean Eison, but there have been many others brought to this forum).Bibi don't you fret. We can talk ourselves into or out of anything, Remember as chicken-licken was going one day to the wood, whack! an acorn fell from a tree on to his head. "Gracious goodness me!" said Chicken-licken, "the sky must have fallen; I must go. and tell the King.". Bit like this forum can get at times.Hx
 
Its this "prove to me I don't have ALS" attitude that will keep a person here for 7 years, or even 20+ in some cases.I haven't been on this site in a while, and now I remember why. I hope the newer twitchers like Bibi realize that this condition really is benign, even though some people on this forum refuse to believe it. Best of luck to you all.
 
You don't need studies to be posted here when you have the *beep* neurologist saying it himself. Did you read above? I would take a doctor with 30+ years of MND experience over any, I MEAN ANY, study you throw out there. You want to see the study? It's called:bfsforum.com 1000's of twitching cases. How many did we have progress to ALS when there clinical and EMG was clear and they were being seen with only twitching as the complaint? Zero. That's a good enough study for me.
 
dude, look them up yourself. Aboutbfs.com is not a catalog service for PubMed articles. My guess is you have a PC. Look them up like we all have. I know you have already. These articles in general serve no good for this group of nervous twitchers because everyone has their 'cognitive filter' raised so it would be difficult if not impossible to digest subjectively regardless. Jason and LittleLost and Bobojojo above do a good job at summarizing them for the group. (Thank you fellas for taking the time to do that btw)
 
ShrkWhisper, how many people do you know (or just heard about) who were initally diagnosed with BFS (by an expreinced neuro) and who eventually developed MND?
 
Robj, yes I do think most people here hate you. :)If you are looking for an admittance of being a hypochondriac, yes, guilty as charged of having that mental problem. Good luck in finding somebody on this website that isn't a hypochondriac or horder of health anxiety in general.
 
ShrkWhisper, explain to us why we don't have ALS. You seem to know. Do a better job than others here. Don't just point out others' BS (as you may believe), for lack of a better word. By the way, I happen to trust information others provide here for the most part.
 
Wise words, "These guys on this site are just as worried as you. They can't admit it until they (are) pushed to the edge." Seriously, very wise words.
 
Can I just say:JoshSon: You have the best common sense posts. Clear and direct.Helen: I adore your illustrations. They make me smile :p ShrkWhisper: I finally see your point but it was a roundabout way of telling it. The other thread today where you talked about the LandLord, you didn't fill in the missing blanks until just now...You implied he started with twitching but never got a diagnosis. He never sought one. He clearly had a WHOLE LOT MORE going on than just twitching or cramping.
 
Thanks for sharing that awesome piece of news Robj. We all appreciate your comments very much. It really makes everyone here rest easier. :rolleyes:I don't go on the ALS forum because admittedly my psyche can't handle it and plus I was told I don't have ALS so there really is no particular reason to go there. I wonder how many stories there sound just like this: "...I saw several ALS specialists at the top institutions for a few years after twitching started. They all said I was benign and diagnosed me with BFS. I joined a group of nervous twitchers online and found some peace. I have had clean clinical exams and EMG's for years and now I have weakness and an ALS dx."I am going to go out on a limb and guess zero. Just a guess.
 
Dear all,Thank you for this discussion in my thread. I did not follow it comletely but will take the advantage to all you seniors to ask a question. 18 month oh twiching. 2 years of symptoms. No cramps. Now have problems with weak legs and tingling left foot. Yesterday i had a clean clinical and clean emg in both calf muscles. Neuro said..definitely no signs of als. He just confirmex my sulcus ulnar syndrom. But f course i know that s.th. is wrong...with all your study knowledge...can i be in or out?Btw als expert in Emilyomousey said to me that if twitching is longer ago than 12 month it is not related to als if it de elopes later...on the other hand a Emilyomouse blogger who developed als 14 years ago (still alive) had fascis and als was dx 3 years later. She just wfote she started to have some uncoordinated legs in first year...i am curious on your comments...:)
 
Dear all,Thank you for this discussion in my thread. I did not follow it comletely but will take the advantage to all you seniors to ask a question. 18 month oh twiching. 2 years of symptoms. No cramps. Now have problems with weak legs and tingling left foot. Yesterday i had a clean clinical and clean emg in both calf muscles. Neuro said..definitely no signs of als. He just confirmex my sulcus ulnar syndrom. But f course i know that s.th. is wrong...with all your study knowledge...can i be in or out?Btw als expert in Emilyomousey sait to me that if twitching is longer ago than 12 month it is not related to als if it de elopes later...on the other hand a Emilyomouse blogger who developed als 14 years ago (still alive) had fascis and als was dx 3 years later. She just wfote she started to have some uncoordinated legs in first year...i am curious on your comments...:)
 
Deutsche, sorry but I just don't understand... Why, why and why are you still chasing ALS? After 2 years of your symptoms, once again you have been told by a neuro that you don't have it. But still, here you are and wondering again. Go and celebrate with your girlfriend/wife and your friends and forget about ALS. I also think it would be good for your mental health that for some time you forget about this forum.
 
The blogger you mention had lack of leg coordination. You just had yesterday antother clinical exam which itself means you have no problems with coordination or muscle strength at the level of clinical examination which means that your feeling of weakness is perceived.We all know stories about people physically strong and fit who can not make a single step becasue their mind prohibited that for them for certain reasons.There is something wrong with you besides anxiety (at least you had a month of unexplained fever) - but I think you may forget about MND as a possible reason for that.
 
Dear answerer to my post,Wow i am astonnished that you know this Emilyomouse blogger. She is also famous from tv..yes she had also some other symptoms...but seems a bit unspecific..? For example i do have crazy finger cramps since about ten years. Especially when eating. I am glad that this got a rare phenomenon the last years....and so it never scared me...until the beginning of my strangebody journey. My wrist shrinked since that time and s.t. hurts. Today i got an mrt of it and dont know outcome yet. I definetely have muscle loss in hands though its not yet atrophy. .some nights ago i could not move one arm for seconds while awake and the day after this arm hurt.....so there is a clear strange process going on. Maybe there is something inbetween mnd and other nerve processes...i don't know..it's good to have a clean emg. Though just 2 muscles.but maybe i do not believe enough i those examminations and also statistics do not help me either..the only thing which would help isif only my body would stop that process.. I don' t know if there are more folks like myself..btw sorry for interrupting the study discussion. ..go ahead ;)
 
Today I had a cramp in my hand again....first since month. It was in my palm. And I have again shin splints...They come and go...
 
Thank you very much Gary for posting me! It's an honour to me....I think there is a lot of anxiety and also a very special body condition with Hashimoto, suspected Ehlers-Danlos Syndrom, slight Fibromyalgia involvement (rheuma doc and clinic) and both sides sulcus ulnar nerve syndrom which triggers my anxiety beside my pain. So I really have developed some mnd similar symptoms. It is a pity that I looked to much into this mnd blog for I found some similarity between her and me. But of course my brain says, if I have weak legs and EMG shows up nothing and reflexes are ok, then it must be from my other problems. But the mind plays tricks on me quite often. I am working on it. Have a nice Christmas to all of you!!
 
I enjoyed the month i didn't log into this site. I enjoyed my home page on my phone not opening to this site automatically. I enjoyed forgetting my password. I enjoyed not secretly hiding from my wife and others to re-read posts and search and check the boards all day long. but just like a drug addict in a room full of drugs i couldnt stay away. My intentions were good but i came across this post and well we all know the rest. Here we go again falling back into that place i didn't want to go. I'm not saying rob j doesn't have some valid points (even though he had a weird way of discussing them). i think its good to not be sheltered and ensure we are always open to new information and i think gary and others did a good job with these multiple rob j posts and its important to not be sheltered as its essential to the integrity of this board yes i still twitch 1000 times a day (not kidding) close to 16 months now and yes i'm still worried and yes this still consumes me and yes i wish it would *beep* stop but i just think the basics haven't changed...no point repeating them as they are all above. I've said it over and over if we could just stop twitching or if could be decreased significantly this would all be easier to forget. But we can't because most of us are remained of it constantly. keep in mind that its the fear of the unknown that consumes us and me as well. for many of us here despite achieving so much we have been unable to beat this fear. We need to spend more time focusing in on this and other correlations to bfs instead of filling this board with trying to prove or disprove thingssome key things we should remember that many of us have discussed before: i'm quoting here a poster "There have been 100s of studies over 4 decades, and scores of avenues tested searching for the elusive early warning sign that preceeds ALS i.e millions of research hours and they have searched 1000s of potential blood markers, changes on MRI results, PET scans, ultrasound anomalies, early EMG findings ,genetic testing, environmental exposures, race, age, location, coexisting conditions, urine analysis, kidney analysis, respiratory disorders, muscle biopsies, diet.... the list goes on for ever.....guess what despite it all.... they have still found NO reliable preclinical early marker for ALS, and that includes the presence of fasciculations. If fasciculations were a statistically reliable biomarker for early ALS, then let me reassure, this would have been exploited a long time ago" another one in response to some of rob j comments: - "Mayo clinic who said a clinical and an EMG are enough to reassure a patient – - Mayo clinic follow up of patients with BFS for decades with 0% developing ALS –- Eisen’s first study founding that the timeframe between twitching and ALS is around a year as a maximum – - Eisen’s second study finding the same results – - A study showing a strong link between BFS and anxiety, depression, neuroticism etc. – - Prof. Carvalho saying he was never mistaken in his diagnosis of benign twitching vs. malignant twitching - Fake!"the 5 year thing mentioned by rob j in a previous post. Others posted the 5 year thing as well "Dr. Andrew Eisen - Canada - "in my opinion if after 8 months there are no other clinical features then it is not ALS."----Robj says --> GoodDr. J. Katz- Director Neurology, University of Stanford, Forbes Norris ALS research center --->Robj says----> Good Dr. K. Lomen-Hoerth - Director of Neurology UCSF - "One year clean EMG, no chance." ---> Robj says -----> GoodDr. Robert Miller, Director at Forbes Norris ALS Research Center, San Francisco, ALS research since 1976!! ----> Robj says ---> GoodDr. McEvoy, Dr. Watson - Mayo Clinic - Rochester, Minnesota ----> Robj says ---> GoodCleveland Clinic USA ----> Robj says ---> GoodMass General (Harvard U) ----> Robj says ----> Good" i could go on there may be other reports that contradict these viewpoints but these also can't be dismissed but perhaps we have to keep things in perceptive and follow the facts and the facts say normal clincal and normal emg then your fine and wait up to a year to catch any statistical outliers which are rare of a rare diseaseplease tell me what i got wrong here in my postthanks
 

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