Back to Rehash: One Year Later

[Rundown]

Hey everybody! I haven't been around too much lately (been hanging around health anxiety boards instead) but I thought I'd come back and rehash some conversation with some members that I've gotten to know this past year. It was around this time last year when I stumbled upon this site. Between the muscle twitches and sensory issues, I was convinced I had MS/ALS. Fast forward 1 year, 6 neurologists, and 2 Brain MRI's later, I'm still here. However, that doesn't mean I feel any better. If anything, I feel as if I've deteriorated more. Being that it is summer, I've definitely noticed an increase in my symptoms, be it the twitches, the fatigue, and the parasthesia. My question to everyone here is, do you guys notice an increase in any type of symptoms when exposed to the hotter temperatures of summer? This truly drives me crazy and makes me feel so isolated. I specifically brought up this heat intolerance to an MS specialist I'm seeing but he did not seemed too concerned, as he told me that he wouldn't call it heat intolerance (I told him my left leg/left arm begin tingling when i sweat/am hot). What do you guys think? Normal or not normal?

 

[ftheatre]

I am almost at 2 years since I have noticed my twitching and this year I have seen a strong increase during summer. At first I thought it could be due to allergy, but now I am also thinking about hotter temperatures. Maybe there is not reason at all and this is now my new level, and maybe it will step down soon... No clue, but yes, I am like you.

 

[LostLamb]

Dehydration causes twitching because it messes with your electrolyte balance by unbalancing their dilutions and hence concentrations ( this includes calcium, magnesium etc) , but this tends to be transient and resolves. Perhaps we BFSers are just a bit more sensitive to even slight changes, so we don't need to get fully dehydrated, just a bit less hydrated than normal to tip the scales and increase our twitching in the heat. Anyway that is just a random throw away thought of mine. Hx