SparkySunshine97
Well-known member
Hi all,it's been around 3 or 4 months since I've posted on here. I needed to go and get my head in a better place. I've had 4 months that have brought me realisation, acceptance and comfort with my condition.My experience started nearly two years ago. Back to exercise and suddenly I was getting these calf twitches, went to Dr Google and BAM!!! That was it, fear, anxiety, depression gripped me on an 18 month journey that saw me visit a Neurologist twice, had 3 MRI's, including brain and back and an EMG. All were clear, but still I continued to suffer pain and twitching in my calves and pain in the hamstring area. The Neurologist had a happy smile on his face so I asked him why could I be sitting him front of him still in pain and fasics. He just shrugged his shoulders and said "it's not ALS" so relax.Eventually I went to see my physio as I had a 10 year history of pelvic displacement, due to a lifting injury. All I can say is he saved my world, he examined me and said "besides the sciatic nerve trauma, you have Piriformis". The Piriformis muscle sits deep inside your gluet muscle and for some people the sciatic nerve runs through the muscle. So for the last 6 months my road to recovery has seen a number of discoveries.1. If you tell yourself, you are getting weak, your body will act weak.2. Couple extreme levels of anxiety, lack of sleep and depression and you have a receipe for weakness.3. Mind, body and spirit are intertwined and a depressed mind, will refer in the body.4. Muscle pain, can present in many areas of the body that are totally unrelated to the area of cause. (you will see people present with bad backs and yet it's cause is down at the achilles or calve area)5. Nerves and twitching are exactly the same, when I was bad I started to twitch in my face cheeks, arms, scalp and then my right eye. All symptoms of nerve trauma in my sciatic nerve region.What I would say is, if you need to go, go see your doctor, neurologist etc. Get the all clear and go live your life. I still twitch, sometimes not at all, sometimes alot. But I know it's to do with my pelvis and piriformis. I go do my exercises and the twitching subsides and i get on with life.Can I thank all those wonderful people who stood beside me, sent messages of support and logic (running bear, mommy london, twitchydoc, DownUnder to name but a few). You pulled me from a very dark place. I will visit this board regularly and help support people. i can't tell you not to worry, but what I can say is that BFS is benign, but it can be distressing. Remember it feeds on our nervous system, the more anxious you get the more that superhighway of nerves starts to throw electric energy everywhere.I'm grateful for this episode of my life as it has reshaped my view of the world and the way i look at things. I used to be a "glass half empty" person, now it's nearly alway's "half full" And it's also shown there are some wonderful people in the world who are willing to spend time help others.Speak soon, Love, prayers and rest