MizGwitchyfairy
Member
Hello Again. I've not been able to visit these boards much recently. It's nice to see the continued support being offered to everyone. I have experienced this condition now for approximately one year. I just wanted to share with everyone a bit of my journey through this past year if I may.
When the cramping, twitching, and electric shocks began pulsing through my body, I flew into a panic and thought the worst. Fortunately, I was quickly diagnosed (within 3 months) and then began to try to calm my fears and manage the pain (not an easy task
) It was through this support group that I found peace among the turmoil---and calm within the storm when doubts would arise over and over again in my head if this was really a benign condition. Since that day many months ago I have had to face greater obstacles than I ever could have imagined. I have fought difficult infections, have been hospitalized three times in the last three months, and am awaiting the results of a Bone Marrow Biopsy. To keep things 'on the light side' I always tell my doctors who are treating me while at the hospital to PLEASE fix this BENIGN BFS--it's going to push me over the edge. They just look at me in disbelief! With all else I am dealing with...this is what I want them to FIX??? 
Soooo, I guess unless someone hasn't experienced BFS, they really cannot understand the toll it can take emotionally and physically on a person.
Well, I guess I'm done rambling. Not sure I made any sense. Just try to please know in all your hearts that this is a benign condition, you will be okay. Hang in and have a great Memorial Weekend!
When the cramping, twitching, and electric shocks began pulsing through my body, I flew into a panic and thought the worst. Fortunately, I was quickly diagnosed (within 3 months) and then began to try to calm my fears and manage the pain (not an easy task
) It was through this support group that I found peace among the turmoil---and calm within the storm when doubts would arise over and over again in my head if this was really a benign condition. Since that day many months ago I have had to face greater obstacles than I ever could have imagined. I have fought difficult infections, have been hospitalized three times in the last three months, and am awaiting the results of a Bone Marrow Biopsy. To keep things 'on the light side' I always tell my doctors who are treating me while at the hospital to PLEASE fix this BENIGN BFS--it's going to push me over the edge. They just look at me in disbelief! With all else I am dealing with...this is what I want them to FIX??? Soooo, I guess unless someone hasn't experienced BFS, they really cannot understand the toll it can take emotionally and physically on a person.Well, I guess I'm done rambling. Not sure I made any sense. Just try to please know in all your hearts that this is a benign condition, you will be okay. Hang in and have a great Memorial Weekend!