Back Again: 10 Weeks of Twitching

[masteroflifey2y]

Hi again!

I've been twiching for about 10 weeks now. Had a clean EMG TWO weeks into twiching (on the bad days I think it must have been too early...), and had a strangling feelin in my throat for about 6 weeks, but now it's finally almost gone.

The twiches, however, are still here - as strong as ever. I have a few twiches here and there, mainly on my knees and legs but also occasionally in the upper part of the body and the arms.

My latest worry is this extremely persistant twich on my right hand (I'm left-handed). It's been there for 8 days now. It's situated on the outer edge of the palm, halfway between the wrist and where the little finger ends. The muscle keeps contracting and it often sticks to its contracted position for a FEW seconds then lets go and does this 5-20 times in a row. Then a pause of a minute or two - or less - and there we go again! I keep testing my little finger and my hands for strength and luckily haven't noticed any loss of strength so far...

I read the earlier posts and know this is what is called a hot spot. What worries me is mine going on for so long and that the muscle contracts for such a long time - the intervals are much longer than in my other fasciculations. I' m getting all of these thoughts again of ALS beginning in the hands, of "relentless" fasciculation" of muscle tissue dying...

I'd be glad to hear if any of you have had the same type of experience...

 

[Longricher]

I have had many hot spots - they lasted from a few minutes to months. I have faviourite sites for twitches that recur frequently

Finger twitches - I get many of these. Most are very brief, but sometimes they last a second - in my case no more than that.

So to answer your questions, I for one have certainly had hotspots going on for eight weeks. I don't know about the contractions with the twitches.

 

[owingDuckWhistler777]

yep, I've had fingers twitching & waggling from side to side. My current hot-spots (lips, forehead) have been going for 3 months so far, often with quite lengthy contractions eg 2-3 seconds. Annoying, isn't it?

 

[m47Just1More4th1]

Alive,
I know what you are going through and it can be very frustrating. You actually sound a lot better than I did @ 10 weeks. Firstly, and I know this can be hard, but believe in your EMG. Many doctors tell us that a disease would have to be present for some time (5 months) before symptoms would show up (like twitching). So...if you are twitching and had an EMG @ 2 weeks you are fine. Now..having said that I realize that the mind is another completely different batle. I have been twitching for 13 months (pretty much 24/7 in the calves and insteps and my left hand has joined that battle). Even to this day..I find myself testing my hand at times. However, you have to try to trust in what the doctors told you. Believe them! You definitely have something..and it is called BFS. Annoying, yes...debilitating, no.

I have and continue to twitch in the exact spot you describe...but mine is much more fine..one of the little muscles there fires at will..with a larger twitch in the same area that comes on every so often. I also twitch in the webspace between my thumb and forefinger. I think these areas are common in BFS.

Try to remain calm and continue to rely on this board and previous posts to get you through this stressful time. I cannot promise that this will go away, but it will definitely settle in with time.

J

 

[masteroflifey2y]

Thanks everyone for the answers!

You made my day! ) Sometimes it's just SOOO hard to believe things are just fine (=benign) when the strangest things keep happening!

 

[coolcat]

ive had that twitch in the palm for five years and it only happens when I am stressed about something.it sticks closed for about 3to20 seconds.it never really bothered me.I have so much else i can focus on.
this palm thing is nothing!
reduce your stress
thanks eric