Baby Girl Amberlyn Virginia Arrives!

InkedMama

Well-known member
Hey all....UPDATE: I am now bfs FREE for the most part I am down to just a few twitches a week!!! First of all, I want to THANK EVERYOENE for being there for me on this site it is such a godsend if you find the right people. At times it can be a nightmare though. I must admit.Secondly, I had my baby girl Amberlyn Virginia July 2, 2008 via c section (unplanned) but Emergency after 27 hours of hard labor. Oh and yes.. your muscles still twitch under epidural if not worse. Anyhow Amberlyn weighed in at 4:27pm 7llbs 5oz. Healthy as ever which i am so thanful for after undergoing all this bfs worry and stress. The emg and neuro visits. My story 28 yr old. 1st exp this Oct 2006. body wide random twitches. Saw gp Jan o7 declared it was nothing. They went away on their own all sumer and came back when i was 3 months pregnant. I freaked nout. I had every symptom in he book of the dreaded disease so I thought.Twitching ALL OVERWeakness (percieved) it rotated and migrated. Started what I thought was slurring words. Not a soul noticed.Biting my tongue.Tongue tinglingCrying for no reason (presto their I thought was the emotion inliabilty.Saw cheif of neurophysiology twice..had all test, emg no als, no way. Did I believe, NO!!!!This went on til about a month ago when I realized as my life started changing and I got busier that I did not HAVE ALS and my twitches were gone. I get a few random oes a few times a week but so what. I dont think twice.All those symptoms I thought were als are now easily explained to myself.Twitching all over (anxiety, stress, malnutrition) Weakness (self testing my muscles over and over and over with ridiculous excercises that the olympic trainers coudnt even do)Slurring (maybe the umpteen tranquilizers I was taking to help me get through this. However people still say I never slurred ever so OK. ANXIETY!? Biting tongue (saw dentist I had missing molar on bottom right side of mouth. It is the most common thing to happen when that happens because the tongue swells to fill in the space. Also he said my pregnancy was causing my tongue to swell. Havent bitten my tongue since Amberlyn was born..See ALLLLL these symptoms I wanted to list in the the ALS basket was just not correct. I was wrong. My doctors were right. So please If you've bee cleared. STOP IN YOUR TRACKS. DONT THINK TWICE. DONT SAY WHAT IF I AM THE ONLY ONE THAT HAS IT AND THEY ARE MISSING IT. YOUR NOT. STAY OFF THE ALS SITES it COST me my sanity and my marriage.Not almost, it DID!I dont wat to say much more and I dont want to read anything on this site as of now. I am totally confident what I have was is and will always be BFS.God Bless Everyone...and thank you so much for the ones who pulled me through.Thanks for the temporary ban from the site too. It was much needed.Loving Life, No longer pregnant but I am HAPPY :sick: Lovely
 
I am sooo happy to hear about the birth of your daughter-- that is great news-- can you imagine that you actually had a life without her? you are going to love her more and more each day-- it is a really really wonderful thing to be the parent of a girl-- i adore my daughter so much-- and you will have such fun when she is little! It goes sooooooo fast-- take lots of pictures--I am also glad to hear that you are feeling well -- I am still in wondering land-- having all kinds of odd symptoms-- my worst is my throat thing-- cant quite describe it but it almost feels tight and like i am thrusting my tongue-- anyway, saw a doc at johns hopkins who heads the als clinic-- he said bfs--- but i am going back in 2 months so he can keep an eye on me--i dont twitch as much as i did, but still twitch about 20 times a day on a normal day-- some are worse-- but do still get the tongue twitches-- they feel like they are on my throat though too--hard to describe--anyway, i was so glad to see you came back--please stay awhile and help us through-- we need you--xo
 
Told ya so DD :D) ..Congratulations on the birth of your daughter i hope she keeps you run off your feet and busy enough to put this BFS firmly in its place and move on. ;) ATB
 
Yahoo Dee Dee: I have wondered about you so many times. I'll be you little angel is adorable. Glad you to hear you are doing well. Glad to hear from you. BlessingsCindy
 
Hi Lovely! Sorry I'm late to the party but good to hear from you and congratulations!Sounds like everything is coming up roses for you--as if there was ever any (real) doubt.Take care--and stick around!Mark
 
Congratulations.Don't come here hardly at all these days myself, it's not that I am cured or anything, I just don't worry about it any more. If I did have ALS it would be a pretty rare kind, that has actually seen me improve at some things like my swimming which is really coming on.
 

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