Aaah... The joys of the good old NHS!!!

)
Actually I went to my GP, did the clinical tests, and left the building.... Had a few really nasty hot spot episodes in my arms and legs over the next few weeks and was referred by my GP to a neuro in Wimbledon ( I think, for my own reassurance, my GP was never concerned at any stage ). As I am on a company medical scheme got to see the neuro after a wait of about 7 days...
He did the full clinical exam again, listened carefully to my symptoms... and said Benign Fasciculations ( didnt call it a syndrome ). He was happy to do whatever test I asked for, but was not positive about finding anything specific... I declined all further tests because of the 'rat hole' that this can take you into psychologically. He reckoned primarily extended periods anxiety / adrenaline / stress hormones contributed to this...
By the way I have also been going to a Cognitive Therapist to help with this... This has helped me to embrace rather than fear this d*mn thing!
It still changes all the time and continues to suck big time.... But hey, after about 19 months of this, it almost has become my friend!
Any additional specific questions just ping me on my personal address ( ).
hang in there!
Des