Apology for Unexpected Alarm

Highlights Only
Yes, it is possible to have twitches as your first sign. Possible, but highly unlikely. For every rare story like this, you will find hundreds more on this forum in which the twitches were attributed to bfs.Also, I went through that poor girl's posts. It seems that she was falling down about 6 months into it, indicating weakness. At what was about 7 months her reflexes were off and if I do recall she also posted about slight hand atrophy. We also don't know the full story. We don't know if she chose incompetent doctors who didn't give her a thorough exam at first due to her very young age, etc.I think the consensus is 6 months with no weakness or atrophy and you can be pretty sure it's benign. The younger you are, the less likely it's als. I believe you're still a teenager, right? My dear I can assure you that you're fine. I used to twitch here and there in high school too and decades later I'm still here. Talk to your parents and see a therapist. You have a better chance of getting an aneurism or cancer than als, yet you don't worry about that, do you? So many people twitch and it means nothing.Please also be careful posting things from other forums here. It only causes worry and the scenarios are so rare, that it does no one any good. Take care.
 
Uggggghh, this post is surely going to cause unnecessary panic among BFSers. A couple things I need to point out here. First of all, constant twitching all over your body is very consistent with BFS and should not be considered a bad sign. Many of us have areas that never ever stop twitching. Feet and calves are the most common areas but other areas as well. My elbows have twitched every minute of every day since June 2012. Search my old posts and you can see videos of it. As I type this post, my back, thighs, arms, and tongue have all twitched as well. Its my personal opinion that by definition, you SHOULD have "bad constant twitching all over your body" if you have BFS. That's what BFS is.Additionally, positive Hoffmans sign is also very common with BFS. I have it and I know many other BFSers who had that noted on their clinical exam as well. So please do not think positive Hoffmans is a bad sign. I don't believe anyone should be posting links like this on here. Like emmie said, you don't know the true story. Why focus on one story like this instead of the thousands of stories on this board?
 
You're right BobJazzy, I edited my post so as not to cause confusion. I really do wish the OP would delete this because without knowing the full story, it's meaningless here and has no place on this forum. Medically proven facts, studies and statistics do belong here. And when we look at the facts, we see that twitching as a first sign of als is so rare in an already rare disease.
 

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