twitchdirtyroo
New member
I apologize in advance for the "same old, same old" content and LONG post you'll find here. But for some reason I have been unable to take comfort in the many stories nearly identical to my own, and feel that I need assurance specific to my case. I'm sure this will all sound very familiar 
Thank you for reading and offering your thoughts.April 18, 2009, one week before my wedding I developed an absolutely maddening twitch in my left temple. I dismissed it (or tried to) as it was an incredibly stressful day (last saturday before the wedding - tons of stuff to do!) and fortunately by the next day it was gone. During my weeklong honeymoon I felt occasional flickers by my temple but it never really came back, full-on.Our flight home was incredibly turbulent. To the point that even the flight attendants seemed distressed - something I had never seen before. I was wretched and miserable and on the verge of tears through the entire duration of the 6 hour flight. I was literally shaking with fear. Finally we landed safely (obviously and I tried to sleep at home. Throughout the night I had the most violent and bizarre movements which I now understand to be nocturnal myoclonus. Bizarre, but I chalked it up to stress from the flight. The next day, at work, I had a panic attack. Residual stress from the flight? Related to the myoclonus onset? I'm not sure. The myoclonic nightime movements would continue for another month- jerking me out of bed every night - before I could finally see my doctor, who was initially bewildered, though as my symptoms did not yet include daytime twitching, not overly concerned. Throughout the summer she gave me mirapex, ativan, a sleep study that yielded no results and finally a suggestion that I see a neurologist.Soon thereafter the daytime twitches started (or started again, I should say, as my initial temple twitch was during the day). Not jerky myoclonus, but the garden variety fasciculations that we have all come to hate. Eyelid, mouth, cheek, calves, thighs, shoulders, abdominals, back, clavicle. Not constant and far from debilitating, except for the extreme anxiety it provoked. Hotspots nut not focal. Nothing lasting for more than a few seconds. The only ones I was able to see were leg twitches as I could never get to a mirror in time to see the others. (I had had similar twitches about 13 years ago, in highschool. On my thighs. Bad enough that I googled them and came across ALS but as I was only 17 I quickly dismissed it. They went away. )I should say that at this point I was not hugely concerned about the daytime twitches simply because the nighttime myoclonus was so disabling (it prevented me from sleeping) that it was all I cared about.Anyway went to the neuro in early July and he gave me an exam and pronounced me completely healthy though he was also at a loss to explain my symptoms. Said that given my history it was likely stress related. Recommended an EEG and MRI "just in case." Had the EEG - normal. MRI is scheduled for tomorrow (took forever to get the authorization!)The thing is because my GP referred me to the neuro for the nocturnal myoclonus, I did not mention the daytime twitching to the him. STUPID, I know, but it was so new at that time and not yet disabling. But he did give me the entire neuro exam, strength tests, grip, gait, drift, Babinski, reflexes, etc and said that I seemed totally fine.SO - in the month that has lapsed since my neuro appointment, the myoclonus has disappeared as mysteriously as it came on. But the milder daytime twitching continues consistently. I never have a twitch free day but the twitches are generally mild though mentally jarring as anyone who has ever had them knows. my question is - do I go back to Neuro and tell him about the daytime twitches? Or can I be reassured by a healthy, complete neuro test? I have NO feelings of weakness or stiffness at all. But I keep thinking how much comfort can I take from that visit when I wasn't fully forthcoming with my symptoms????Thank you to all, this site (and lexapro have kept me sane.
Thank you for reading and offering your thoughts.April 18, 2009, one week before my wedding I developed an absolutely maddening twitch in my left temple. I dismissed it (or tried to) as it was an incredibly stressful day (last saturday before the wedding - tons of stuff to do!) and fortunately by the next day it was gone. During my weeklong honeymoon I felt occasional flickers by my temple but it never really came back, full-on.Our flight home was incredibly turbulent. To the point that even the flight attendants seemed distressed - something I had never seen before. I was wretched and miserable and on the verge of tears through the entire duration of the 6 hour flight. I was literally shaking with fear. Finally we landed safely (obviously and I tried to sleep at home. Throughout the night I had the most violent and bizarre movements which I now understand to be nocturnal myoclonus. Bizarre, but I chalked it up to stress from the flight. The next day, at work, I had a panic attack. Residual stress from the flight? Related to the myoclonus onset? I'm not sure. The myoclonic nightime movements would continue for another month- jerking me out of bed every night - before I could finally see my doctor, who was initially bewildered, though as my symptoms did not yet include daytime twitching, not overly concerned. Throughout the summer she gave me mirapex, ativan, a sleep study that yielded no results and finally a suggestion that I see a neurologist.Soon thereafter the daytime twitches started (or started again, I should say, as my initial temple twitch was during the day). Not jerky myoclonus, but the garden variety fasciculations that we have all come to hate. Eyelid, mouth, cheek, calves, thighs, shoulders, abdominals, back, clavicle. Not constant and far from debilitating, except for the extreme anxiety it provoked. Hotspots nut not focal. Nothing lasting for more than a few seconds. The only ones I was able to see were leg twitches as I could never get to a mirror in time to see the others. (I had had similar twitches about 13 years ago, in highschool. On my thighs. Bad enough that I googled them and came across ALS but as I was only 17 I quickly dismissed it. They went away. )I should say that at this point I was not hugely concerned about the daytime twitches simply because the nighttime myoclonus was so disabling (it prevented me from sleeping) that it was all I cared about.Anyway went to the neuro in early July and he gave me an exam and pronounced me completely healthy though he was also at a loss to explain my symptoms. Said that given my history it was likely stress related. Recommended an EEG and MRI "just in case." Had the EEG - normal. MRI is scheduled for tomorrow (took forever to get the authorization!)The thing is because my GP referred me to the neuro for the nocturnal myoclonus, I did not mention the daytime twitching to the him. STUPID, I know, but it was so new at that time and not yet disabling. But he did give me the entire neuro exam, strength tests, grip, gait, drift, Babinski, reflexes, etc and said that I seemed totally fine.SO - in the month that has lapsed since my neuro appointment, the myoclonus has disappeared as mysteriously as it came on. But the milder daytime twitching continues consistently. I never have a twitch free day but the twitches are generally mild though mentally jarring as anyone who has ever had them knows. my question is - do I go back to Neuro and tell him about the daytime twitches? Or can I be reassured by a healthy, complete neuro test? I have NO feelings of weakness or stiffness at all. But I keep thinking how much comfort can I take from that visit when I wasn't fully forthcoming with my symptoms????Thank you to all, this site (and lexapro have kept me sane.