Any Experience with Anxiety/BFS Medication?

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AussieSurvivor

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Just be given this script for assisting me with my anxiety and BFS pain ( sensory stuff). Anyone had any experience with it??One trade name I have googled is Sandoz, but there may be others. It says take it with food, suggesting some potential for stomach irritability, the last thing I want with IBS!All help appreciated. Did it help???thanksRodger
 
try looking under tegretol. I took the 2nd generation, trileptal early on. They are in a class of anti-seizure drugs that have been helpful to some. My experience was that gabapentin (neurontin) helped to relieve some pain, but neither really did much for the twitching. I wish you luck and hope that it helps you...it has helped many others.Take care,Gary
 
Thanks for the responses guys, appreciated. Haven't filled the script yet, maybe I wont.Leslie, in answer to your question- the list is long! But basically involves burning, tingling, numbness, pain, tremors (hands and chest-internal), shakes,tightness,cramping, hyper-sensitivity to various parts of my anatomy- a moving feast! From teeth to toes and most things in between. This being in addition to twitching of course. Such a joy....not!! cheersRodger
 
Rodger, have you tried the Carbamazepine yet? My neuro just gave me Gabapentin. I did try it in the past but a very low dose. So far it seems to be helping. I think my twitches have been down by 50%. I actually haven't been thinking about them. I hope it continues to work.
 
No I googled the side affects and precautionary stuff on it Leslie..white cell count drop etc...so I am bit scared that the cure might be worse than the disease!I will look into Gabapentin. Might be worth ago perhaps. The twitching I must admit is bothersome, but the sensory stuff bothers me a bit more. Although twitching is 24/7, so it would be good to reduce those numbers.Especially the facial ones and the thumpers. Had a flat white coffee tonight ( I don't normally drink coffee but that coffee smell at the cafe sucked me in!) Calf twitches went crazy after it-great in the movie theatre!!! thanks for that adviceRodger
 
Carbamazepine, gabapentin, pregabalin, diazepam and also vitamin E. All these are recently being prescribed to decrease fasciculations/sensory symptoms. Carbamazepine slows down the synaptic responses and repetitive charges, to me it seems to be working a bit.
 
Neuronint is not as effective, gabapentin works differently. But sure maybe what does not work for some of us could work for the others.
 
WindyCityGentleman: Yes, I was stating that, sorry for bad phrasing: Neurontin is not as effective as gabapentin works differently than carbamazepine or diazepam. Some reports do say that it affects benign fasciculations, but CBZ is more effective.
 
I have been on carmamazepine/Tegretol for 2 months. I take 600mg twice daily. Has cut fasics down by like 80% (especially the dreaded night/early morning fascics). Still have the cramping however :mad: mjb7002
 
For me it stops my twitches by almost 100%I can still induce them by tapping my thenar muscles (it worries me like hell).But the random twitches and the pos strething twitches almos disspear
 
Nocturniscope, not sure you speak about carbamazepine or gabapentin but if either works it strongly supports the benign diagnosis. Unfortunately, sometimes the improvement disappears after few weeks of using..but it definitely worths a try.
 
I take oxycarbazepine a modified and less toxic version of carbamazepine. The effect on my twitches is tremendous and even when I stop the drug the twitches take 1 to 2 weeks to come back. The problem is: they come back.Even taking this drug I can still induce twitches by tapping my left thenar muscles and it worries me like hell. The random twitches and the pos stretching almost disapear. I get 1,2, 3 twitches a day when taking this drug versus 1000, 2000, 3000 a day when not taking it.
 
I read a article saying that gabapetin can stop als fasciculations and bfs fasciculations. I read tons of articles saying carbamazepine can stop benign twitches but never read anything about its effect on als fasciculations.The things that keeps me sane today are: I don't have cramps and carbamazepine stop may twitches.
 
There are times when I think it is not. When I poke my left thenar eminence and I get a shower of twitches after that I become depressed.as I sad, the lack of cramps, and the great effect carbamazepine has on me is what is keeping me sane.
 

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