Hi. This is my first post. I am very scared of als because I had a friend w/ it (in her 20's). I started twitching 2 years ago (I think - I didn't think much of it so I never payed close attention). At the time I was 3 months pregnant. one year ago I looked up twitching on the internet and totally lost my mind. I quickly lost 15 lbs due to worry waiting for my neuro exam. I couldn't wait, so I went to the er. My neuro exam was normal except for brisk reflexes (which I still have). ct of brain was normal. Next day emg of left side of body showed fasics and slowed sensory conductions (due to cold hands?) & borderline left median nerve velocities (had tendonitis there 2 years prior). Rest was normal. I was elated. That didn't last long. The twitching occured in every muscle in my body every few seconds 24/7. I saw another neuro. exam & emg were within normal limits. All bloodwork is normal. Again I was elated, again it didn't last long. I recently read of a woman who had twitching first and I lost it again.
I have no profound weakness (just rubbery legs) or atrophy although I have really skinny calves which is where most twitching occurs. I seem to hit things w/my feet a lot. Today I looked at my calves and the muscles (aside from the twitching) are constantly moving very slowly like worms under the skin. it never stops - not even for a second. This has me more scared than the twitches! I also get occas. spasms. I can't get out of this dark place. I feel like I am waiting to die.
I have no profound weakness (just rubbery legs) or atrophy although I have really skinny calves which is where most twitching occurs. I seem to hit things w/my feet a lot. Today I looked at my calves and the muscles (aside from the twitching) are constantly moving very slowly like worms under the skin. it never stops - not even for a second. This has me more scared than the twitches! I also get occas. spasms. I can't get out of this dark place. I feel like I am waiting to die.