LampBuster2
Member
HiI am a 32 yr old male. Very actice. My story started a bit differnt than most but my fears seem to be the same as most. i've been on reading this site for months now and there seems to be a lot of good people around here that can help. In fact i have chated with Alonzo who has been great.In Dec 08 my hands and forearms would always ahe, they would also be flush red and ice cold shortly after my feet were also achy. Saw many Dr. who couldnt' figure it out so i started to research myself an yes this was a HUGE mistake. Als of course came up and thats when i started to pacnic and twitch like crazy. Since then I have been living the nightmare. After a few blood tests we noticed that i had a eleveated Rhumatoid Factor. Dr said i had Rhumatoid Arthritus( this was a relief at the time) however after i saw 2 other specialists and more blood work they both said that i don't have RA and can't explain why this antibody is elevated. I fianlly got in with a Neuro in April. He did a clinical exam on me and found no weakness, then he did a EMG that was not conclusive because he said my hands were way too cold. At the end of the appionment he said that i don't have als or ms and thinks it is bfs but to come back if i had stiffness in my arm or problems with swollowing. At that time I was in anti-inflamtories and my forearms did not ache and of course when i left they started to ache again. I wish i had got a clear on the emg cause to see the neuro i have to wait another 2 months. I have a ok understanding of how als works but i am still not over the worry. Thats why i need your guys help. Below are a few questions and concerns. All this has been going on for 8 months now and i am able to lift weights i also play competitive bball and football(flag without major problems). Along with the daily achy hands and twitiching I have the following symtpoms. The rational side of me says that if i had als after 8 months i should have clinical weakness but i have problems convincing myself.Cold sensititivity. Hands get very cold if the weather is cool.Burning feet usually after a walkTingling in hands and feetFace muscles also have started to feel tight and sometimes itchy and twitch and as of last week i seem to have wettness but not druling on the side of my mouth.Here are some questions1 My hands ache and forearms are tight EVERYDYAY. I know stifness is a symptom but not sure if my stiffness is the same.. Can anyone explain what als stiffness is.2My hands have always been thin but I personally believe that there is muscle wasting going on if so should there be weakness as well.3 I have read that ALS "usually" starts in one location. Whatever is going on with me is widespread. How rare is it to be both hands and feet all at the same time or is it even possible.Also From what i know als will usually destroy the limb before it stars on the next one. So i shouldn't feel some weekness in both forearms and now having issues with my face this fast.One thing i should mntion around the same time this all started i started going to a chiropractor for the first time and he was working on my neck (not sure if there is a link).I had my fears under control a little while ago but now all these new symptoms with my face have arrived and that s what has brought me back to square one. Thats why i am here any advise comments wil be appriciated .ThanksBilly