Anxiety After Twitch in Tongue and Chest

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SirTrouserz

Well-known member
I thought I felt a twitch in my tongue yesterday that made me very anxious. I had a normal EMG and I'm trying to remind myself of that, but this is very difficult. I had twitching in my chest/neck area also. Is it any wonder it so hard for us to keep anxiety under control? I'm really trying to stay positive and not let myself go donw that path, but some days it's really, really hard.
Sir_Trouserz
 
My tongue has been twitching for 2 years 2 months. This is absolutely the worst twitch in my opinion and I've twitched from head to toe over the last 6yrs 9 months :rolleyes:
 
Well, these posts made me feel a little better, because today I've had the tongue twitch thing. I posted my question over in the other section. Do you guys feel the twitch, or just see it? I don't see it, or rather, I didn't try to see it, I just felt it when I came home. All of a sudden, the side and near the top of my tongue twitched for a few seconds, and then stopped. This made me SO anxious because I've read somewhere where tongue twitching is a hallmark sign of ALS, but you know how some of these sites can scare you to death. After reading alot of the posts on here, I think tongue twitching might be considered kinda normal, but I'm not sure. Let me know what you know! Thanks so much, Val
 
Hi Val,
As I said in my post above, my tongue has been twitching for 2 yrs 2 mths. Like Sharon, I can see and feel these horrible twitches, I don't think you can ever get used to them. When I first googled "twitching" in Sept 2000, I wasn't twitching in the bulbar area but I read all the concerns over tongue twitching as being the ultimate confirmation of the dreaded disease. I have to say I still have these worries and the fear still makes me break into a cold sweat. I have read all the relevant "tongue" posts on this site and some posters have said that their neuro's have tongue twitching too. My only comfort, after all this time, is that I can do all the tongue tests ok and still eat, speak and drink as normal. I passed Kit's self test too, which helped. At the risk of sounding really odd, but I'm almost past caring, (see what this twitching does to normal, sane women) I can still do a headstand at the age of 47, so my paraspinal muscles must be ok too!
It is very difficult as it infringes on all areas of your life. I have to make myself be sociable and eat and drink with friends when my wretched tongue is twitching. I do find wine helps - fortunately :p
Sorry this is so long - hopefully your tongue twitching was a one-off episode!
All the best,
Alayne
 
Thanks to all again for the helpful posts!
Alayne~~so you have read, though, where tongue twitching is a sign of the dreaded disease? Because, I have read it also, but then usually find out deeper into the article somewhere or post, that it also needs to be preceded by other bulbar symptoms, such as the swallowing or talking difficulty. However, if you are having it, along with many others on here, it seems like it might be more common than we think among us BFS'ers.
I know what you mean about finding it to be difficult to engage in normal life stuff, such as going out with friends. I find it emcompases most of my thoughts. It's beyond distracting. I have many other things to foucs on, and worry about, and I am neglecting those things. This sounds terrible, but I have a 13 year old daughter who is doing great, but she does have scoliosis, and started wearing a back brace a few months back, and of course I am taking good care of her, but I mean, I can tell that sometimes I am way too focused on the problems I am having and not dealing with things that might be bugging her. I am sure she dosen't feel this way, and it's probably just something I am thinking in my own head, but it still takes a toll on you mentally for sure. I am sick of waiting for symptoms to get worse, and being aware of everything.
I am 47 also, and this just started for me about three months ago. You should feel very reassured that you've had it so long. If I had it that long, I think I would forget about it by now, since they say that with anything like ALS, you would have known it by now. That actually is what my neuro said, to just "wait and see", and that time will tell.
By the way, where is that self-test info that Kit wrote? I think I remember reading that, and I'd like to find it again.
Thanks again for the reassurance! I started taking my vitamins again as soon as my tongue joined in on the party, and hopefully that will help. I'm not sure, as so many of these things can be in your head, but I think sometimes it seems like the vitamins make things worse. I only take a Centrum, and then a Magnesium. Well, good luck, and thanks again!! Val
 
Hi, my tongue started twitching about a month ago, and it has really set me back. I'm so scared!!! I haven't been this scared since all this started. My tongue twitches and feel like its cramping sometime. I've had about every twitch you can have now, and this is by far the WORST. I made a appt. with my neuro. but thats not until aug.. I sure could use any positive and prayers anyone wants to send my way.
 
From another thread:
Same advice!

Tongue twitches…so what! Try a little tongue cramping with twitching as your send of for a month long adventure of one sided tongue cramping followed or preceded by cheek cramping and a little drool!
 

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