Hey all!2 reasons for this post: 1. I am hoping to pass on some info that will hopefully put some minds to ease and secondly because I am having some anxiety about some new symptoms.I'm not going to go into detail about my "story" as I have hit that up before. My current situation is the standard twitching ALL over. You name it, it twitches. Only real difference now is that it is just as pronounced in my upper body as much as my legs. I also have an incredibly worrying one in my right tricep that seems to twitch when I am actively using it ( I have posted about that before). But...that leads me into some helpful words (I hope): I could not go to my 3 month follow up with my neuro as I have changed duty stations and am now in San Diego. However, I did follow-up with my new GP and he did a really good job looking at everything, answering my questions etc...he asked numerous questions, reviewed in detail the results of my EMG and he was the first person to straight up tell me that I "do not have ALS" and that I am "just a twitcher." He mentioned that BFS is of course a diagnosis of exclusion and throughout the multiple doctors and one neuro that I saw, he felt the intent of exclusion was met. Of course I at times question if he should have referred me to another neuro, but what's the point? We need to at some point understand and trust those that have been educated and trained to figure things out. He did a full neuro exam, found absolutely nothing of concern, and with the the nerve study results felt confident in his finding. People, your regular doctor would be able to find out if something was out of whack, and THEN, they would refer you to a specialist for further examination. Like so many others, my initial referral was for my own piece of mind. Also, I had another neuro answer my question about the twitching in my tricep (I also presented all of my other symptoms). He said "the twitching is as likely to occur at rest as it is with use of the muscle....usually there are findings on an EMG once the twitching has started...this makes you statistically less likely to have ALS than the untested public" and the best one in my opinion "this is a common occurence and almost NEVER turns out to be ALS." So there is all the good things that I can pass on from my doctors (take it as you wish).Onto my newest worry....I have been feeling a "vibrating" feeling in my left foot at times. Only lasts a few seconds, goes away, then will appear again if I for instance pick my foot up and set it down. I of course looked this up and saw someone describe it as if their foot was their phone and it was set to vibrate. A good way to describe but not quite that intense for me. This of course has me worried as it could be the "progression" of my fear (even though at times I can just rest re-assured with what my doctors have told me). Has anyone else with BFS experienced this? I have felt the vibrating feeling in my quad before but this feels different for some reason. It has been happening for about a week or so. This has been a crazy long post and I appreciate your time if you stuck with it. If it spoke to you, I hope it helped. If you have experienced what I have been going through, I would love to hear your thoughts (especially on the vibrating foot thing).One last piece...I have started to see a psychiatrist about dealing with my "deamons" as I like to call them. I have only been twice but I think it will be of great help in dealing with my anxiety over this. I will post about the resuts as I start to see them.Cheers,Mike
Anxiety about New Symptoms
- Thread starter flyboy101
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